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#72122 03-30-2008 04:33 AM | Joined: Mar 2008 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2008 Posts: 46 | I have started chemo this last week after pulling teeth and a surgeon having to file down alot of the jaw bone which was diseased. My tongue has two tumors on it. It is kinda numb in spots and is painful. Sometimes it hurts to even swollow water. Has anyone else had this issue and when will it go away? Radiation will start in two weeks or so.
Stage 4A SSC Left Tonsil, back of tongue and Lymph nodes on left side. Tonsil removed, Chemo and Radiation treatments completed on June 26, 2008.
| | | | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Jun 2007 Posts: 510 | Johnny: Hello and welcome to OCF. There are many here who will be happy to help you get through this difficult period. You will more responses if you'll post some general information about your diagnosis, staging, treatment plan, etc. Where are you being treated? 'Filing the jaw bone' certainly doesn't sound like fun, but maybe this was the only way to save it.
We'll be here for you! Keep us posted...Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement; T2 N2-B M0 Stage IV-A 28 IMRT + 6 Paclitaxel/Carboplatin Getting stronger every day!
| | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2007 Posts: 622 Likes: 1 | Hi Johnny. I am assuming by your post you are just beginning treatment.
The pain in your tongue is quite normal. I had induction chemo before surgery and radiation and the tumor pain started to go away after the firts full week of chemo.
Hang in there and feel free to ask more questions as theu come up!
Kevin
18 YEAR SURVIVOR SCC Tongue (T3N0M0) diag 06/2006. No evidence of disease 2010 Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.� Stephen Hawking | | | | Joined: Mar 2008 Posts: 46 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Mar 2008 Posts: 46 | I am heading in for the second week of Erbitux and have noticed that the pain in the tongue is starting to disapate some. Thanks emmylou, Treatment is in indiana at the central indiana cancer center. stage 4A.
Stage 4A SSC Left Tonsil, back of tongue and Lymph nodes on left side. Tonsil removed, Chemo and Radiation treatments completed on June 26, 2008.
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