#71960 03-26-2008 03:35 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | HI ALL
I hope you are all doing well . sorry I have been away for awhile ....alot because of being busy and then the FLU !! and it was hard with Bren...somtimes I need to walk away ..but I do check in ..
SO I wanted to say hi to everyone .. I am having my yearly PET on April 9th so I hope all goes well ..I have a sore throat for about 6 weeks now been on 2 courses of antibiotics and had the scope .. He seemed to think all was fine alot of mucus and redness ..and Horsness on my end LOL... That DANG FLU that I was vaccinated against ....LOL
SO I thought I would say hi and I LOVE and MISS U all so much !!
ALso My Dr asked me if I would do a commercail with them ..Unfortunatley I said NO ... I will do most anything to advocate for this disease ..but being on TV with somthing stuck down my throat was NOT on my list ..... Hopeing the BEST for everyone !!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2006 Posts: 583 | Hi Sharlee,
I too been away and check in now and then. Sorry to hear you are down with flu. YUK. Hope Scan goes well for you on April 9th. Funny, I will be doing scan follow up on breast on the 8th.
Take care and get well soon.
Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Good luck to you both on the scans. I just got the final all clear on the ones I had a few weeks ago and boy does that feel good!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | Welcome back Shar and Diane,
Hope you both get good reports an your scans.
I don't get scans, but I will be having my annual chest -x-ray on April 7th (1 day after my 3 year anniversary) and I have my next visit to the surgeon on the 15th.
Hope you're feeling better. Shar.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
| | | | | Joined: Aug 2006 Posts: 199 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Aug 2006 Posts: 199 | Sounds like a lot of us will be having our yearly checks in April. Mine is April 16th, annual chest x-ray and Labs, and also a biopsy of the previous site of my cancer as this is part of the clinical trial protocol. This will also be the end of the active part of the clinical trail, and both my oncologist and surgeon tell me that reaching the 2 year milestone with no recurrence is a very positive thing... I also graduate to F/U every 6 mnths at MD Anderson, which makes me a little nervous...I liked being check every 3 months while I was on the trial...
Ginny M. SCC of Left lateral tongue Dx 04/06,Surgery MDACC 05/11/06: Partial glossectomy with selective neck dissection. T1N0M0 - no radiation. Phase III clinical trial ("EPOC" trial)04/07 thru 04/08 because tests showed a 65% chance of recurrence. 10 Year Survivor!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Welcome back Shar. I wish you all the luck in the world with the Flu, but it sounds like maybe you have the new strain that is going around. Whatever it is, I sure don't need anyhting else to go wrong with this old body. LOL I thought for sure I would be feeling better after 1 month since the implants, but it doesn't work that way. Saw RO yesterday and he mentioned the new flu virus. Toldme to stay away from anyone that is sick. I just had to post something . LOL But glad to see you posting again.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Yea ..they told me that again I was one of the "lucky " or in my book .."not so Lucky " ones to get the strain that the vaccination DID NOT protect against !! Hopefully SOON I will be Kicking it !! Altough to hear me talk or cough ...you probably wouldn't think so !! LOL..
WOW april dose seem like a busy month for all of us !! I hope everyone gets GREAT news !!
And Jim ..I will Make sure to stay away from ya !!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Hi Shar, It's good to hear from you. Sorry to hear you got the flu, though. I didn't know there was a strain going around that the shot didn't cover. Yikes. I'm surprised I haven't gotten it given that my students seem to expose me to everything.
I did get the bad cold/respiratory virus going around, which it seems my husband and I have been passing back and forth to each other for the last month. I finally got over it and now he's sick again and since he's coughing all over me at night I wonder if I will get it again too.
Anyhow, good luck with your scan--just got through all mine with the all clear for another year. That's always a good feeling!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Shar,
Glad to hear from you again. I also had the flu shot and I also got something that only lasted a week. It's tough running a restaurant and a CPA firm during this time of year because I am exposed to soooo many people, especially employees and once one emplee gets something it's only a matter of time until it gets around to me.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Good luck Shar,
I have my scan april 4 I think. I am freaking myself out. I have nearly walked my dog to death trying to keep busy and my mind off of this.
I hope you get over the flu soon. You have had enough problems to make this year a better one!.
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
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