| | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Michelle,
I agree that it is better for both of you to be there when you see a physician. It is amazing how colored the perception is, even if the terminology is not an issue. I saw my RO only once a week and then only for 10 minutes or so. If that is the case for you then there is no pressing need to have to be there with him for all IMRT treatments. As long as he can handle the side effects and getting there is not an issue.
I personally appreciated the company of my wife for those times I had an appointment with a doc, but the other times I also appreciated some semblance of being in control and doing this by myself.
M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Hey Markus - your last sentence is kind of where we are. Dan is so used to doing for himself and for our family as well and not used to me taking care of him except in the normal ways of household help since I am a stay at home mom. He likes taking himself to the regular IMRT treatments - and I like him doing it as well, for as long as he's able. It's these "surprise" see the doc times that are messing me up :-)
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Hey gang, Friday was our marathon day at the Cancer Center and the MO prescribed a z-pack, just to be safe. No signs of thrush. We didn't get to see the RO, he was out, but we will see him on Tuesday. The RO's NP said she expected it to hit next week based on where he's being radiated. So who knows what is what and when is when  . I will have to work on my patience and learn to go with the flow and take one day at a time.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | My side affects didn't hit me until after they were over. Believe me they were mild compared to the spaced out meds they put me under with. I think that is what got me so far down and made me fight. good luck u 2.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Robs side effects kicked in from day 3 and the rest of his tx was just a nightmare.It was thought a lot of his problems came from him being a pale skinned red head,but his throat hurt veryquickly as well.I went with Robin to every single visit,he was strong and idependant but this was so far out of his comfort zone he gladly left the doctor speak to me.The biggest problem wa getting him to do as he was told!!!!
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | Hey Liz - good to hear from you. Is it warming up there yet? When does spring start for you guys? We have azaelas, dogwoods and bradford pears in bloom now and things are looking good!
I swear sometimes I think men are as hardheaded as concrete - why can't they do what they are supposed to do? I'm already battling with Dan and then this morning I realized he didn't take his BP meds the past few nights and he has HIGH BP - I said I really don't want to be a naggy "witch", but this is IMPORTANT. UGH - just a quick vent.
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Feb 2008 Posts: 33 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Feb 2008 Posts: 33 | Aftre missing so much work I started having my husband put me on speaker phone before the doctor comes in. I miss so much when he is sick that I need to work when I can. I hope we have a couple vacation days left to relax on a beach someday.
Cindy | | |
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