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#70964 03-04-2008 12:57 AM
Joined: Apr 2007
Posts: 64
AdeleE Offline OP
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I am try to find some information about manual lymph drainage, post salivary gland cancer. For some reason since my original surgery back in 06, I keep getting inlarged lymph nodes around the orignal incision site. I had one big one removed last fall and it showed no further cancer (Yeah!) however they keep swelling. I had the lymph drainage last week and of course now I am afraid I may be spreading the cancer. Has anyone had this therapy does it help or should it be avoided?
Signed, always a little scared!!!


Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!
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If you are talking about lymphatic drainage massage therapy, I had an ENT at a top hospital recommend this to me as one way to help because I had (still have?) lymphedema around my lower tongue which may be part of what is impreding my swallowing.

With all the massage therapists around where I live (there is a massage shcool in my city so there are scads of them), I was only able to find one trained in lymphatic drainage. I saw her a couple of times and I didn;t notice any appreciable difference in my tongue or swallowing. It is a very gentle massage tehcnique, though, and she did teach me how to do the basics of it on myself, which I did.

I don't think it could hurt you.

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
Nelie #70985 03-04-2008 12:36 PM
Joined: May 2002
Posts: 2,152
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I went to a Physical Therapist for this and it did help quite a bit. This has the added advantage of being paid for by insurance which I doubt that a massage is. The PT also did intra and extra oral massage to improve saliva and avoid trismus. Also stretched neck/arm muscles that were screwed up from neck dissection. I'd talk to my doctor about getting a script and a recommendation to PT who does this. You should also have cleared massage with him before having it.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Joined: Jan 2008
Posts: 179
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I had it done after a surgery where my lymphatic system was impaired (not Cancer related), and it worked wonders. I would check and see if you cannot get it covered through your insurance. The benefits were fantastic, but it got to be very expensive as I paid out of pocket each time. There were not too many skilled in it in my area either. I wish you luck with it! smile


Dad: Age 65 Heavy smoker/drinker. Biopsy-No surgery. Cancer base of tongue/throat. "Invasive Squamous Carcinoma RRT" --Beginning 1/9/08: IMRT treatments (5X/wk),chemo pills (4/day) and Chemo IV (once/wk) PEG tube inserted 1/25/08. Treatments ended 2/26/08

JUNE 30, 2008 Officially CANCER FREE!!!
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Posts: 27
I found a person trained in manual lymph drainage in my area from the Academy of Lymphatic Studies website.
http://www.acols.com/
I selected "find a therapist" then entered my zip code and received the name of a trained therapist by return email.

I've just begun therapy and I'm pleased so far. The only down side is that the therapist is a massage therapist not a physical therapist so my insurance doesn't pay.

marilyn


dx: Stage 3 T2N2aM0 Left tonsil, base of tongue, 1 left node. HPV positive.
tx: Tonsilectomy (left) then Cisplatin x2, Erbitux x7, IMRT x35
Phase 3 clinical trial. Completed 6/28/07
mshoe #71355 03-12-2008 12:43 AM
Joined: Apr 2007
Posts: 64
AdeleE Offline OP
Supporting Member (50+ posts)
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Joined: Apr 2007
Posts: 64
Thank you for your replies. I have been reading about this terapy and I think I will give it a try. Also, massage will hopefully breakdown some of the scar tissue in my neck.
Went for my check up yesterday with Oncolgist and seems I am okay and FREE for another 4 months!!! Yippee.
Wishing you all well.


Adele,
mucoepidermoid carcinoma of the submandibular gland, 05/06, left neck dissection, gland and tumor removed, intermediate grade, margins negative, 9 lymph nodes negative, no rad, no chemo,
11/07 surgical biopsy of lymph node left neck, no cancer!
Joined: Jun 2007
Posts: 5,260
Patient Advocate (old timer, 2000 posts)
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Joined: Jun 2007
Posts: 5,260
Dr JohDavidPollock is upset with the James Cancer Center at Ohio State for not admittt9ng to him that I have Cancer below my right ear and needs surgery.I wonder why it is when you are one of the big guns,, it getsharder to admitt a misatke.I shouod havd beeen finishin this treatment instead fo jts starting thme.Time to shake the BUSH maybe.


Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here

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