#71199 03-08-2008 08:58 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | OK, here is a good news -- news story to perhaps provide a grin or 2. The good news is that I am feeling good, with only the neck\shoulder discomfort and dry mouth to contend with these days. The bad news is that since I have no obvious physical limitations (though many mental ones), I had no obvious or available excuse for not shoveling the 16 inches of snow we have gotten since noon yesterday! Another 3 to 5" expected today and tonight before this moves on. Wow -- usually our golf course opens by March 17 -- probably not this year! Maybe open for sledding, but that is about it.
For those of you in warmer climates, I am jealous!!!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Sep 2007 Posts: 98 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Sep 2007 Posts: 98 | Jeff, I am in the same boat as you in Canton, Ohio. Today I got my snow blower out and also did my 4 neighbors driveways in the culdisac we live in. We had to shovel the ends of the driveways as the snow was to deep from the snow plows. We also did this the night before!
I never imagined I would be doing this 6 months out from finishing treatment. I am also up to 2 miles running each day on my treadmill as I am training for the 5k races in the Subway Ohio Challenge Series race curcuit.
Tom
SCC T4N1M0 left side tongue & 1 node
Dx 05/21/07 42 yrs old
40 Tx IMRT @ 70 Gy started 06/25/07
Cysplatin & 5fu 1st & 4th wks
treatment ended 08/23/07
| | | | | Joined: Jun 2007 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2007 Posts: 42 | we are on the same sled as you guys are here in barnesville ohio...we had the snow then ice and now alot of snow... put it this way.. enough snow that MR, HARD HEAD EZJIM went out and ran his snow blower at his house and hes only a week out of surgery..it does no good to try and tell that man he shouldnt be doing these things...lol.. he has always been that way...
Tom and Jeff .. enjoy the snow and stay inside and keep warm....its cold out there... welll to cold for me...lol...
BarbT
Barb
| | | | | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Feb 2004 Posts: 598 | I'm a native Northern California boy who moved to Columbus 15 years ago. I think this is the biggest single snowfall we've had in that time. My black labrador sure loves it, though!!!
Jeff
SCC Right BOT Dx 3/28/2007
T2N2a M0G1,Stage IVa
Bilateral Neck Dissection 4/11/2007
39 x IMRT, 8 x Cisplatin Ended 7/11/07
Complete response to treatment so far!!
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | OK barb,, u got me LOL . don't go out in it guys. it made my mouth bleed.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | WOOOEEEY, I do not envy you folks....after a nice series of much needed rain storms last night here, the sun came out and we hit 70 dry cool degrees...lovely. I have had my house open all day... the cats are in hog heaven.
You can give me a hard time in August when the hurricanes are threatening and the humidity is 100%...we will pay the price for having good weather in the winter.
Stay warm, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Jan 2004 Posts: 104 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jan 2004 Posts: 104 | Good thread Jeff!
Add me to the tired but happy list!
I love the snow and this blizzard is awesome!
I don't think I've seen this much snow since the blizzard of '78!
Lot's of shoveling though! But it's great!
Jim, slow down just a little, will ya?!
Dad had oral lichens planus, and oral leukoplakia before T2 SCC,2 nodes.
DX10/23/03
IMRT 12/29/03.30 rad,3 boost.
Brachytherapy 3/8-3/11/04.
Recurrence Nov07 Stage IV.
4 Surgeries
No rads, no chemo
I have oral lichens planus,
thrush,leukoplakia 2/20/08
6/2/08 biopsies "inflammation"
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You guys up north think you have it tough....I just pulled 15 "loads" of Oak leaves and pollen sacks from the bottom of my pool. We have it tough down here, that's all I gotta say. Oh I forgot to add that it will be in the 70's today. LOL
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | We just got mostly ice here--which is actually harder in terms of getting it off the walks and driveway. I am so ready for Spring....
Nelie
(by the way, watch your neck and shoulder issues with shoveling--I find mine can be really aggravated by the muscles it takes to use a shovel--snowblower not so much)
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Thanks guys!!!! your storm is headed over the pond and is due to hit us at midnight tonight.
We have been warned to batten down the hatches and expect severe damage.
love liz (doors firmly locked and all moveable objects tied down.)
Last edited by Cookey; 03-09-2008 09:01 AM.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | OOO cookey it's a biggy our house shook last night with the storm, i was like holey moley thank goodness we took down that tree (we used to have this half dead tree right in front of the house...would have been in the living room last night).
Hey Cookey i have just noticed your from yorkshire, i am a yorkshire lass (well half) my mom's family was from Rotherham, Where hast thou been since I saw thee and all that.
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | Ooooh Liz,
Hold on to your facinator!! Stay warm and safe, Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | Well Debz i certainly won't be "On Ilkley Moor bar T'at" lol!!!its blowing a gale and lashing with rain ,although we are not as bad as the poor souls on the south coast.I watched the news this morning and they were at southsea in Hampshire where Robin and i lived for six months and spent many many happy weekend days out.The poor newscaster could hardly stand up.
Rotheram is about 30 miles south and to the left of me and should not be doing to bad as the storm hit the West side of the British Isles,still it makes living here interesting.
love liz
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
| | | | | Joined: Jan 2008 Posts: 67 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jan 2008 Posts: 67 | LMAO cookey that reminded me of my Nan she would always give us a rendition of that after a few beers...bless her.
Hows the weather, if it follows true that we are sending it over there then we are having a really nice few days so the sun is on it's way...honest (i did try to keep it here ...i'm kinda selfish that way ;0)...(Debz <<<< sun hog )
Debz
Age 40 Diagnosed with stage 4 SCC tongue, sept 07 started 35 radiation treatments and 3 chemo Had my first follow up PET - got the all clear 17th April 2008.
26th Had my PEG tube removed...eating almost everything. Was hard but learned to eat without saliva, it's so good to chew and swallow food!
| | | | | Joined: Feb 2008 Posts: 341 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Feb 2008 Posts: 341 | You guys are funny - I'm in the same "weather boat" as Deb and David and today was a gorgous, sunny 67. But we will totally pay for it with tornadoes, hurricanes and HUMIDITY later this year.
Stay warm and drive safe all you snow and ice folks and Jim you gotta rest silly, you're going to slow down your recovery.
Liz - we'll be thinking of you tonight!
Michelle
Michelle, CG to husband (45), DX 2/08 Stage IVa Adenocarcinoma Salivary Gland (T2N2bMO)
Parotidectomy & ND 2/08, Tumor margins not clear, 4 of 30 nodes positve for cancer,
TX IMRT 39x, cisplatin 7x (completed 5/1/08),
PEG (4/22 - 7/9), No port. Currently in remission!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I love the humidity and hot weather. I guess that's why I moved to Florida. But of course I love riding my bike at 22 mph for 50 miles in 90 degree weather so I am probably not the best voice of wisdom either.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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