#7055 03-05-2006 06:21 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I know it has been a while since she last posted but I was just wondering if anyone keeps in touch with her.
Thanks,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#7056 03-06-2006 09:26 AM | Joined: Jan 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 42 | Hi Ed, I kept in touch with her for a while. I think she told me she is back at work. Otherwise
I haven't heard anything new. I'll check in
and see how she is.
Cathy
Cathy
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#7057 03-06-2006 05:00 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Ed,
I've wondered about Vicki also. Hope we hear good news from or about her.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#7058 03-07-2006 06:43 AM | Joined: Jan 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 42 | HI I'll let you know as soon as I hear from her.
Hopefully I'll hear something soon.
Cathy
Cathy
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#7059 03-07-2006 06:43 AM | Joined: Jan 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 42 | HI I'll let you know as soon as I hear from her.
Hopefully I'll hear something soon.
Cathy
Cathy
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#7060 03-08-2006 05:20 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Ed, I sent her an e-mail two or more months ago and got no reply. I hope things are going well for her.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#7061 03-09-2006 03:48 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi, I wonder about Miss Vicki and Michael, I have tried to PM Michael but his mailbox is full. Has anyone heard from him? Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#7062 03-09-2006 11:36 AM | Joined: Jan 2006 Posts: 42 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2006 Posts: 42 | Hi Carol, No I haven't heard from Miss Vicky or
Michael and I used to write her son. I do hope
they are okay.
Cathy
Cathy
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#7063 07-08-2006 07:54 PM | Joined: May 2004 Posts: 137 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: May 2004 Posts: 137 | Hello to all, I am here just been trying to stay a float. No I am not back at work. I was doing some volunteer stuff which was very rewarding. I just had another surgery. OUCH!!! I am so tired of 'ole sawbones..I swear he just loves to cut on me. My face is so swollen right now I don't even look ANYONE I know! They had to take the titanium plate out that was holding my jaw bone together. The jaw bone was the bone from my left leg. They had to remove it because it was ripping thru my skin in two places. I had no choice. As usual anything that has anything to do with CANCER is. That is it tho,,,I am done with it all. I told my husband I can't and won't take or do anymore. There is a limit to any one persons amount of pain. I just hit it. Let me hear from you....I sure have missed everyone. This forum is always so so busy that one tends to get lost very quickly in it. Or I sure did. I would ask a question then it would be lost in the flow of things...Praying for us all....Miss Vicki | | |
#7064 07-09-2006 12:39 AM | Joined: Oct 2005 Posts: 122 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Oct 2005 Posts: 122 | So glad to hear from you, Miss Vicki, even though the news isn't the greatest. Now that you have your own thread you can keep us up to date and find it easily. You have been missed!
I hope your pain is under control with the removal of the plate.
Sincerely,
Lisa
SCC Tongue T1N0M0\Dx 3-10-03
Hemiglossectomy, alloderm graft, modified neck dissectomy 4-14-03
3 Year Survivor!
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