#69933 02-15-2008 03:22 PM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | I am 7 months out of treatment, and began having sporadic ear pain about two months ago, on the side that received more radiation. Today it is particularly troublesome. Saw my MO two weeks ago and he said every thing looked and felt great. Does anybody else have this and is it caused by the radiation, or could it be something worse? I saw my ENT for this a month ago, and he thought it could be allergies and prescribed me Nasonex. I just don't know how my throat/ears are supposed to feel now. Would a cold cause me to have ear pain, now that I have had radiation? I am not having throat pain, just ear pain.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | I also have ear pain on the side that was right vocal cord cancer
i think they said it is the nerves healing.boy does it hurt
mine also comes and goes.hope this helps.i have spasms on my right side of neck some times to.it always makes you think the worst.deferred ear pain is what they told me
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Thanks, lolita---I had seen you post about this before, but I don't think anyone but me responded to it. When did you finish treatment? I am surprised you had radiation and 6 chemos for stage 1.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | David had a post on hearing loss and ear pain, Maybe you can locate it and read what he had to say.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hi Jim, I saw David's post re:hearing loss, I believe they were in Hayley's thread. I have done a search, but haven't been able to come up with anything re:ear pain as a late-occuring side effect. I was more concerned with the ear pain rather than the hearing loss. Anyway, I woke up with quite a sore throat today, maybe I have a virus.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | i have a lot of ear pain at times. they staged me at a stage 1t1a
the ent and the oc said stage 2-3- i was in the gray area i think 6 wweks chemo 6weeks rad.now i have a nodular apperance to my vocal cord. had my pet thurs so now we wait ,.Ireally need to stop smoking.did the pet to makes sure itvwasnt a recurance i hope not. the ro i had thought i was over treatd he started just after i got there. the other one was from kansas city . he didnt think i needed chemo.
the onc i had was great he went ahead with chemo to.
just afraid it is going to move some where else please preay for me
and keep in touch
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | | Joined: Jun 2007 Posts: 64 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2007 Posts: 64 | finished my tx aug 13 for chemo and rad
Lolita - Stage 1, no node involvement, no distant mets. 6 weeks of radiation plus 6 chemo treatments, one each week.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Lolita--can you get on the patch for the smoking? Finers crossed for your PET scan, good luck!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Oops, I can't type either; I meant fingers!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Lolita,
I can't believe after all the comments and helpful suggestions that everyone on this site has given you that YOU STILL ARE SMOKING !!! What more do we have to do?? Is there something you don't understand about your cancer's connection to tobacco and a horrible death??? Why did you even bother with the pain of treatment? Frankly I'm disappointed in you.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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