#69781 02-12-2008 09:24 AM | Joined: Jan 2008 Posts: 9 Member | OP  Member
Joined: Jan 2008 Posts: 9 | Hi everyone,
Just released to go home today from right radical neck dissection and left tonsil removal. Feeling sore! I'll let everyone know more as the days go by! Thanks everyone for the support!
Age 47, Right tonsil removed 1/18/08, large mass in right side of neck. Both have been diagnosed SCC Stage IV, on 1/24/08. Right radical neck dissection and left tonsil removal 2/8/08
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Keep us updated Ron and good luck with the healing process.The soreness I believe we all undersatnd and feel for you.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Ron,
Hope you heal fast. Are they planning to do the chemo/rad thing?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | For the first few weeks, you need to eliminate as much drag on the shoulder as you can. Put a pillow under that arm when sitting or sleeping to support it. If you walk any distance, support it under the elbow with the other hand. No lifting of anything over a pound. And get a script for PT to help get your strength back on that side. When dr says OK, use Biafine or other vit E cream on scar. Biafine is a deep wound healing cream and also is used while having radiaiton tretamtents to prevent burning so a good choice if you will eventtually have rad. PT also should massage scar to prevent scarring. You should be as good as new in a couple of weeks. ND is the easy part. I had a tonsillesctomy when I was 12 and that hurt like hell. Hope you are doing fine.
Take care,
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Hang in there Ron! Great advice from Eileen!
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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