#68429 01-25-2008 06:36 PM | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | Biotene burns my mouth. And gives me heartburn but after the burning goes away I feel a bit better in my mouth but the heartburn?? I can't eat rolaids anylonger.Thre pills ( prilosec,etc) don't work the only thing I have found that works is a glass of baking soda and water or malox but that turns my tounge black is there anything else that is over the counter that I can try for dry mouth?
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Have you tried Mylanta or Zantc. These work v=ery well for me. I would be careful of the baking soda and wtaer tho.Don't swallow any ot the Biotene. Just rinse and gargle for 30 sec and spit it out.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Aug 2006 Posts: 294 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Aug 2006 Posts: 294 | Give the Biotene chewing gum a shot for awake/daytime use. I find it to be near excellent in my case. As with many other things, it may not work for everyone.
Bill D.
Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | LOL how much better it would be if we were all made the same way. One cure for all. Ihave no teeth as of the last week so I don't think I better try chewing anything. LOL I have never heard of the gum until now but will try it someday after I get finished treatments and some new teeth. Thanks for the info. Have great day Bill.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | I agree--Thank goodness for the Biotene products, especially the gum. I have found it to be a great substitute for my water bottle when I can't carry it with me (Some work situations). It helps moisturize, stimulate saliva production (Probably from the chewing motion, what little I can produce on my own), and helps keep things limber (the trismus ordeal).
As far as the mouthwash, it also burnt me in the beginning but has improved a lot over the past six months. I still get some burn in the back of my throat immediately following usage, but I think it does help me at night while sleeping. I truly believe in their products and use them all! (No, this isn't an advertisement but if you haven't tried them you should)
My pharmicist keeps about a dozen packs of gum in stock for me at all times and I usually have a piece of gum in my mouth during the day!!
Best of luck to those who try it!!
Steve
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: Oct 2007 Posts: 6 Member | | Member
Joined: Oct 2007 Posts: 6 | I use the Biotene products as well as the baking soda/salt solutions. Both work for me for different symptoms.
The baking soda is good for getting the mucus out of my mouth. I use the Biotene gel at night to keep my mouth moist while sleeping.
I did find a product by Sensodyne called Oasis. It's a glycerin based spray that works for dry mouth. It's small enough to carry in a pocket.
As to the upset stomach have you tried good old Milk Of Magnesia?
SCC, Stage IV, Base of tongue. Dx 9\07. Surg.10\07. IMRTx35 and 2 Cycles of Cisplatin concurrent 11/07. Finished 01/08.
| | | | | Joined: Oct 2006 Posts: 383 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Oct 2006 Posts: 383 | Robert,
I tried the Oasis Mouthwash and it really burns my mouth bad!! That scared me away from that spray but I may give it a try based on what your saying. I had never heard anyone talk about it either way so I stayed away from it after my experience with the mouthwash! That might be a fill in between pieces of gum.
SCC right side BOT/FOM; DX 1-25-06; Neck dissection/25% of tongue removed 2-17-06. Stage 2 Recurrence 7-06: IMRTX35 & 3X Cisplatin ended 10-18-06. Tumor found 03/18/13; Partial Glossectomy 03/28/13 left lateral tongue. Nov. 2014; headaches,lump on left side of throat. Radical Neck Dissection 12-17-14; Tumor into nerves/jugular; Surgery successful, IMRTX30 & 7X Erbotux. Scan 06-03-15; NED! 06-02-16; Mets to left Humerus bone and lesion on lungs-here We go again! Never, Ever Give Up!
**** PASSED AWAY 10/8/16 ****
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | It will be nice when Biotene gets their spray out. The stuff they sent me for the trials was great!
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I buy biotene at WalMart for $5.12 and get them 6 at a time. Works fine for me.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | I agree the trial spray I got from Biotene was very nice--not irritating at all. And I get the dryest in the top back part of my throat--where you can direct a spray very easily.
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
| | | | | Joined: Sep 2007 Posts: 148 Senior Member (100+ posts) | | OP Senior Member (100+ posts)
Joined: Sep 2007 Posts: 148 | I would like to get a sample of that how do I get it?
49 years young 9/2007 Squamous Cell Carcinoma 33 rad treatments. One year later, 9/17/2008 50 years old through the Grace of God. last check up all clear. Living life as it comes to me.
| | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Perhaps you could get a sample from your doctor? The Biotene website - http://www.biotene.com/ - advertises free samples for health care professionals. Or as Jim mentioned, WalMart has it and I've seen it at Walgreen's, too.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I tried the website yesterday and they are out of samples at the present time. Try later .
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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