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#67669 01-16-2008 04:09 AM
Joined: Sep 2007
Posts: 24
nycgrl Offline OP
Member
OP Offline
Member

Joined: Sep 2007
Posts: 24
hello all and blessings,
just to update you on what's happening- we've received lots of info on what to expect post-op, and spoke to a laryngectomee who's been living 15 years with a stoma. he was wonderful, and cheered Del up. he was actually laughing! we also recieved the electro-larynx today. so, as we prepare for next thurs. with some anxiety, at least we're better armed with lots of information. our daughter will also fly in during the hospitalization. that's a big comfort.
i'll keep posting, and i want to thank everyone for their prayers and healing thoughts.
Emma


wife to Del,dx.4/07 BOT SCC t3n3m0 3rounds chemo (5fu,cisplat,taxotere,erbitux)35 IMRT tx.with weekly erbitux.finished 9/07. 12/07 biopsies +,surgery not an option.returned to palliative chemo 2/08. 6 tx.of cisplatin/taxotere,methotrexate 8 tx. He died Aug 20,2008, but lives always in my heart.
nycgrl #67685 01-16-2008 09:10 AM
Joined: May 2002
Posts: 2,152
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: May 2002
Posts: 2,152
Hi Emma,
I had my surgery in August 2001. I have a TEP so did not use electro-larynx. Will he be able to have a TEP in the future? If you have any questions, either post on board or email me rather than private message. If you would like to talk, email me and I will give you my phone number.

Take care,
Eileen


----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
Eileen #67706 01-16-2008 01:52 PM
Joined: Apr 2005
Posts: 60
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Apr 2005
Posts: 60
I am so glad there was someone there to talk to Del and help with fear and worries. Keep us posted!


C/G to Husband Richard SCC Op 4/1/2005 T2N0M0,Neck disection, 35% of tongue removed.
Reoccurance 3/2007,Lymph Node same side Positive SCC, Swelled to 2.5 inches. IMRT X35 Cis X3 Completed 33 IMRT Cis x2 carbo X1 MET to lungs post treatment 10/04/2007
Passed peacefully 31st July 2008.

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