#66272 12-28-2007 08:24 AM | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Hello to all-
I have been working and not able to get on the site much anymore.But I do read and keep up with you all. Now I have a
dilema maybe some of you could help me with.
I decided myself to take multi vitamins and calcium supplements after my suregery to help get my strength back. Then I read an
email from Brian that he takes selenium and aleve and vit e. So I started to take those. I feel wonderful, by the way, with energy and stuff. Just still have pain in my gum and tooth area from constant rubbing.
I am gaining weight by leaps and bounds since my peg came out. I wonder if the vitamins are doing this? I don't really eat that much more than I did. I did quit smoking last year before my surgery.
The health food store told me today that I should take a body cleanser once a year to kill parasites. They told me about parasites and I about passed out right there. Help me yaull, is there any truth to this? I would like to think you could rinse yourself out of germs but this just sounds gross to have parasites!!
What do you all think of vitamins and supplements. MY doctor doesn't really say I need to take anything. That's odd too.
Healthy and peaceful new year to you all!
Debbie
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | This is a great question, I'm glad you asked it. I have been wondering what everyone has been taking for supplements after completing treatment. Re: parasites---I do take herbal supplements for candidiasis(yeast or thrush), which is considered a parasite. I had a problem with this even before treatment. I will tell you what else I take---multivitamin, iron supplement, biotin, MSM, Evening Primrose Oil, Fish oil. I also take astragalus and chinese mushrooms for immune system support. What does everyone else take, and what have they been told NOT to take?
Debbie, good luck getting your strength back!! Teresa
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Before I took anything I would ask the advice of my docs and I really doubt the benefit of clensing your body of parasites except the profit you're putting in a few peoples pockets. JMHO
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I agree with David on the lining their pockets. I was told to take a multi vitamin such as centrum silver.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
| | | | | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | I have to agree with David and Jim that you have to be skeptical of companies 'hawking' cleansers and detoxifiers. They can be quite expensive, and potentially harmful.
I am taking specific antifungal herbs that are not part of a 'system'. I have a problem with yeast overgrowth, so I can use a natural remedy, or take diflucan forever.
Is anybody taking antioxidants? I was told to stay away from them during treatment, and I am still staying away from them.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | If you have parasites in your body - you need a doctor, not a vitamin/herb salesman. This person is full of BS.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I haven't heard much and I hate taking pills and alot of things upset my stomach... So I don't take anyhting.. The Gp probably would like to me to take a multi with iron.
As far as Vitamin E .. I think i read somewhere that it increases your risk for reccurance , has anyone else heard that ?
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | | | | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | You are right. Since my earlier post I have stopped taking E. For most people a good multi each day will do the trick. The data behind most chemo-protective agents is thin. But if there are no toxic levels, and there are no known ill effects of taking it...if it makes you feel better (even a placebo effect), and you can afford it, likely no harm done.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | | | | Joined: Jan 2007 Posts: 346 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jan 2007 Posts: 346 | Thanks everybody,
I did hear that about Vitamin E. I am having a little bone loss after my jaw reconstruction failed from the drilling in the bones that they did so I take Calcium with D and try to get in the sun belive it or not.
I figured the parasite thing was a rip but it was horrible to think such things. My doc never does blood work so I don't know how I would know.
Is selenium still good? IN VA here, I read somewhere that there is a deficiency of it.
Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
| | | | | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I took 400 mg of vitamin E for years until one day a Dr in the eroom told me to to quit takng it. He said I might be causing more harm than good. The centrum has enough vitamin E in it. Therefore I a large bottle in the bathroom closet taking up space. Trash time if I ever think of it.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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