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#62163 11-24-2007 03:27 AM
Joined: Jan 2007
Posts: 346
Platinum Member (300+ posts)
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Platinum Member (300+ posts)

Joined: Jan 2007
Posts: 346
Jeff,
The whole thing with the neck feeling weird-well it may or may not go away-I think it is just individual-but I get so sometimes I don't even notice it. I quess that counts for something.
Don't despair. I am scared all the time because my reconstruction failed and I am left disfigured on my left side of face and still have some issues to work on. Every day that I wake up I am happy that I am cancer-free for this moment and hope so much it will stay that way. But, like you , the new normal is very hard to get used to. You have come to the right place to vent. Everyone hear will listen-at least for a place to view others opinions and get some feedback.
I pray that you get some relief from your inner pain and well as your outer pain. This thing is so mean and tough on a person. It takes everything you got to get through it and everybody you know helps you get throught it.
Take care and may you have peace
Debbie


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
#62164 11-24-2007 06:24 AM
Joined: Sep 2002
Posts: 642
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Sep 2002
Posts: 642
Jeff,
It took a while to get there...certainly more than four months out, but eventually I recovered most of my sense of taste and began really enjoying coffee again as well as sweets. Almost every night I put a little bag of mini-Oreos over a scoop of Blue Bell Homemade Vanilla ice cream...and love it! (Sorry to you non-Texans and assorted others who don't have Blue Bell available). The dry mouth I guess I will always live with but it just ain't that bad.

Hang in there buddy and in time the new normal won't be so bad.

Take care,
Danny G.


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.
#62165 11-24-2007 07:12 AM
Joined: Apr 2006
Posts: 794
"Above & Beyond" Member (500+ posts)
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"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 794
Jeff...Thanks for whining....It means that not only are you human, but that you trust us.....AND that when I feel like that, which I have and will again....I can also safely come here to vent!

XO


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
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