#61926 10-03-2007 01:56 PM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | I am 4mos. post treatment. I tolerated chemo and radiation extremely well, but one thing is concerning me. On the left side where I recieved more radiation I experienced swelling at the lower back of my jaw about 5 weeks into treatment. My RO wasn't concerned at the time. I last saw him early July. I am healing fairly well except this swelling has not improved and has deepened into an ache. Does anyone know if this should be cause for concern?
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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#61927 10-04-2007 01:37 AM | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | No expert here but could be swelling from the radiated tissue. Could be causing some pressure to a sensitive area. Might explain why now it is an ache.
Radiation is the gift that keeps on giving.
Like that wonderful zap.
We have been told that 2 years out things may still be changing.
Call your DR.
That's why they get the big bucks.
Will check back on you.
Maggie
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
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#61928 10-11-2007 04:26 AM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Could this be neck or jaw lymphedema? Is there such a thing? It's just worrying to me; makes me think something got missed.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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#61929 10-11-2007 11:09 AM | Joined: Apr 2005 Posts: 2,219 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,219 | You certainly could have lymphedema, however it seems to me that you should be making an appointment with your doctor. Considering that this has been there for sometime and it is causing some aching, make the call.
Jerry
Jerry
Retired Dentist, 59 years old at diagnosis. SCC of the left lateral border of the tongue (Stage I). Partial glossectomy and 30 nodes removed, 4/6/05. Nodes all clear. No chemo no radiation 18 year survivor.
"Whatever doesn't kill me, makes me stronger"
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#61930 10-12-2007 01:46 PM | Joined: Aug 2006 Posts: 15 Member | | Member
Joined: Aug 2006 Posts: 15 | I also eperienced jaw pain and swelling in the 5th month after tx. I am now going into my 10th month and still have swelling and some pain.. I asked my RO about it, in fact today, and he said it was a reaction to the radiation and would go away at some point. Hang in there.
Judy
BOT SCC Stage III DX August 14, 2006. Radiation and Chemo completed January, 2007. No surgery. "When you have exhausted all possibilities remember this-----You Haven't"
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#61931 10-14-2007 11:47 AM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Thanks for the responses, I am seeing my medical oncologist Oct. 29th. Every little wierd thing makes me nervous.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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#61932 10-14-2007 11:47 AM | Joined: Jun 2007 Posts: 214 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Jun 2007 Posts: 214 | Thanks for the responses, I am seeing my medical oncologist Oct. 29th. Every little wierd thing makes me nervous.
Left tonsil SCC, HPV+. T2N0M0. Tonsillectomy 3-07, bilateral radiation, cisplatin 3x, Tx completed 6-06. Clear PET 4-01-2008.
Thyroidectomy 5-9-08, resulting in permanent surgically-induced hypoparathyroidism and adrenal problems. Bummer.
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#61933 10-15-2007 07:54 AM | Joined: Nov 2006 Posts: 93 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Nov 2006 Posts: 93 | As a caregiver every little thing he mentions worries me. That's my job and I am very good at it.
Glad you are going to see the pros.
Maggie
caregiver to husband
right tonsil stage 3
35 IMRT TX completed 1/5/2007
PET Scan clear 3/07
biopsy 9/07 clear
1st yr PET scan 12/18/07 clear
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