not sure where i should be posting....
mom has had a fair amount of saliva until the last few days. she has also become extremely thirsty. we have an appt with the dental onc tomorrow, will call on the way in to ro. is this common? i figured that once the brachtherapy was over there might be a change, i wasn't expecting this.
i'm also a little frightened as she only finished out patient radiation a couple of weeks ago and already the tumor is raising.
who am i kidding? i'm scared more than i can say.
hope everyone has had an enjoyable weekend.
thanks as always for your help.
Donna

Is your mom on any new meds? My husband just started something new that causes frequent urination...and some sweating...which I think in turn makes him thirstier.

It's hard not to get scared when something gets bigger instead of smaller. Can you call your doctor tonight? If it were me, I'd be calling now, so I could get some possible answers so I could rest better. My doctor got pretty used to my late night questions.

Prayers to you and Rose,

Hey-
I tried calling you yesterday! figured you were out at a soccer field. jessie's team lost this weekend, two girls got hurt, tears....
angry new parents-they want their daughter to play a certain position. ed is the coach, this was my first time present since practices began a couple of weeks ago.
Geez! forgot i wasn't on reg email
Going to sental dentla onc today. also dropping in to MO to get her a fix--iv, thinks she is very dehydrated. then off to ro's to pick up her refill for patch and oxycodone.
can't wait till the 17th. i pray that she will get her cure.
all that came to my mind yesterday was Petey. i saw that tumor back and nearly fainted-no kidding.
will let you know how we make out today. have a feeling it's going to be a long one. i feel so bad for her, she has to have an impression done, he rmouth is so dry to begin with.
by the way, what did they out dan on?

Oh crap! I have my fingers and toes crossed that your mom's tumor is not back and that it is swelling or something else. Please e-mail or post when you return, I will be thinking of you two all day.

You were right...I was at soccer and I can never hear my cell phone ring outside. But, thanks for trying. Hopefully, we'll talk soon. Sounds like it was a rough day on the soccer field for Jesse's team and for Ed.

Between my two kids they had 7 soccer games this weekend. I'm afraid to look at next weekend's schedule. Dan isn't driving yet, so it's hard to juggle the two kids' schedules.

We don't have a dental oncologist...Dan has been seeing our regular dentist...in fact, we were just at his office this past Friday. What is the difference, I wonder if Dan should consult with a dental oncologist just to be safe. I worry about the long term impact of the radiation.

Why is your mom getting trays made? Does it have anything to do with the brachytherapy?

Am glad she is getting hydration today...that helped Dan so much that 2nd week after treatment.

Although, now he is struggling with depression...that's what the new rx was for...but, that rx is causing it's own set of new problems. Arrggghh! He's going to the doctor's later today. He's so tired of being tired and he's impatient about wanting to return to his pre-treatment life.

I see huge leaps and bounds that he has made in the healing department, but I think at his worst he was kind of out of it...so, he doesn't see the improvements quite like I do.

Donna,
Am thinking of you and your mom--try not to get too stressed and worried, she needs you to be there for her, even if it's to cry with her.
You're still the best daughter going and you've got her to hospital.
You must be tired after these 'high-octane' months--I'm less time into than your mom and I know we're exhausted!
Try and get some rest for yourself Dona,
Brenda

Hello Ladies!
Well, it turns out that the tumor is just fine-it raised yesterday, but it was back down today while at the dental onc's office. Apparently, and mind you I have no idea what I am talking about, it's normal for it to do this???? All I know is the MO, RO and DO(dental onc...is that correct?) were so happy with her progress.
She was very dehydrated. I took her over to the MO's office and they set her up with 2 litres. She has to return tomorrow for about the same. they are going to insert a pic line. I thought they were going to have to keep her today, but eventually one nurse wass able to help her. Imagine, they only had to try 8 times! The poor nurses were so upset, I felt bad for them.
Margaret-
Mom went for an impression for the brachtherapy- she will need to wear this for about 3.5 days while they have her in. It looks like a huge mold of sillyputty squeezed to fit inside her mouth.
Brenda-
Thanks for the kind words...some days more than others they mean so very much to me.
How are you feeling?
Donna

Margaret,
I'm not sure why they have her going to the dental onc....Jerry, can you help out here?
I think because it's a CCC, and her teeth were in poor condition. Also, she has a history with gum disease.
I am so tired. I think I'm going to make a cup of tea.
Donna

Donna,

The poor condition of your mom's teeth and her history of the gum disease is really not the issue. Rose needs specialized procedures done at this point, such as the tray for the brachytherapy. We have no experience with these types of procedures and the dentist at the hospital deals with these types of things on a regular basis.

Doing her routine care, such as the root canals that Jeff did, is no problem. Hope this helps.

Jerry

Donna,

Phew!!! I am glad to hear that everything is ok...or as good as can be expected. I hope your mom starts feeling better, 8 pokes is a lot...especially when you don't feel well.

Sounds like the two of you had a long day. I hope you are both getting some rest.

Jerry, thanks for the info.

Jerry,
To my knowledge, no tray has been made. All I know for certain is that they are placing catheters in her tongue, she will get gold seeds placed in them, she will have a mouth guard to protect her jaw....am I missing something here? Oh, and a temp trach. Possibley a neck dissection after...

What I was referring to was the mouth guard which will be made from the impression. I called it a tray since that is what was mentioned in a previous post.

Sorry for the confusion.

Jerry

no worries.
thanks!