#59103 12-15-2006 03:34 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Linda, tell your Docs that your neck and back are begun feeling the aftereffects of radiation and you simply MUST have a script for at least 6 months of professional massage to get through this.  Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#59104 12-16-2006 09:00 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda,
Anything the rest of us could do on our own to help our Turkey Chins? What exactly did they do to you?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59105 12-18-2006 05:13 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | David, she just massages the start out point (which is where they removed my lymph node and kind of pushes softly against my skin and moves it to the opposite side) Its so hard for me to explain, but she said it is right under my skin, not in the muscle so it is done with a soft touch. She also has me doing facial expressions and laying down(on my back) and turning my head to the left and then to the right to help stretch my neck. David, im sorry i dont explain things to well, but do you have insurance? Cause if you do, it is covered, this is a "true condition" people get from radiation or removal of the lymph nodes. So far it really has helped(it also feels great, haha) believe it or not, i was sore from it for a couple of days, you will be surprised how tight everything gets from the radiation!!! My jaw also had a bump on the side of it and now it is gone, so i know it is working, slowly but surely. If i can fax the papers i got from her, to you, let me know, contact my e-mail address and i would be more than happy to send them to you. | | |
#59106 12-18-2006 05:16 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | Hey Amy, dont think i havent thought of that myself, haha unfortunely my insurance only covers so much a year of physical therpy! But hey, im enjoying while it last Plus the benefits it offers...(getting rid of the turkey chin) | | |
#59107 12-18-2006 05:31 PM | Joined: Jul 2006 Posts: 109 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jul 2006 Posts: 109 | To Everyone out there...on this forum, I want to share something with ya'll, something we all need to remember, weather we are just getting started with this or we have completed our treatments, this is for everyone that has cancer or has survived cancer. This is our Christmas Card to ourselves...please just go to the website and take a few moments and enjoy!!! THIS IS FOR US...www.TheSurvivorMovie.com | | |
#59108 12-19-2006 03:55 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda, I couldn't access www.thesurvivormovie.com and a search didn't come up with anything either?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59109 12-19-2006 10:56 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Sep 2006 Posts: 493 | Linda,
I liked the survivor movie. I'm glad to hear your turkey neck is getting better. If we don't speak before have a very Happy Christmas.
Tim
Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#59110 12-19-2006 11:44 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Linda,
I got to see it. I guess my computer woke up.
Thanks
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#59111 12-19-2006 02:38 PM | Joined: Oct 2006 Posts: 160 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Oct 2006 Posts: 160 | Linda, Thanks I also watched the movie. I really liked it. Very uplifting! Thanks for sharing it with us.
Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
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#59112 12-19-2006 03:34 PM | Joined: Dec 2006 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Dec 2006 Posts: 34 | thanks Linda, Inspirational! Tony
45yrs young SCC - TVC - 28 rad trx- future? finished on nov 28,2006
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