Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#56350 04-17-2005 11:26 AM
Joined: Jan 2005
Posts: 56
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jan 2005
Posts: 56
Can someone please share with me what is involved with having the feeding tube removed? Dan is now maintaining his weight and they will be removing the tube shortly, but we are not sure what to expect. Is is done in the hospital or office? Any anesthetic? Painful? Please help!!!!

Tks,
Michelle


Michelle
#56351 04-17-2005 12:34 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
Hello Michelle,

The peg tube removal was nothing more than them grabbing ahold of it and pulling it out. Some do this without med's. I asked to be sedated and they gave me some adivan. It felt like someone punched me in the belly. The pain lasted only a few seconds. Some hurt more than others. Compared to what Dan has been through this will be nothing to worry about. It is usually done in the doctors office.

Best Wishes, Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#56352 04-17-2005 02:13 PM
Joined: Mar 2005
Posts: 58
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Mar 2005
Posts: 58
Hi Michelle,

I too was very aprehensive about having the feeding tube removed. At that time I didn't know about The Oral Cancer Foundation and went to a hosiptal to have it removed. The fear of the unknown was much worse thaI had not sedation or anything and it took less than five minutes. n the removal. It was removed so quickly and painlessly that I didn't realize it was gone until I was told not to lift anything heavy for the next few weeks. Good Luck, Hacklene


Hacklene
#56353 04-18-2005 04:00 AM
Joined: Jul 2003
Posts: 382
Likes: 3
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Jul 2003
Posts: 382
Likes: 3
Hi Michelle,
I too worried about removal but it was very quick, painless and no big deal. Took about 2 minutes. Cleaned the area, and then one pull. Had it done at medical clinic. Good luck to you! - Kris


SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
#56354 04-18-2005 11:52 AM
Joined: Jan 2005
Posts: 56
Supporting Member (50+ posts)
OP Offline
Supporting Member (50+ posts)

Joined: Jan 2005
Posts: 56
Hi Guys: thanks for the GREAT news! Finally....something that seems pretty simple! I'll let you know how it goes. Dan goes back to the ENT on Friday, so hopefully they will do it then???

Thanks!
Michelle G.


Michelle
#56355 04-18-2005 07:12 PM
Joined: Mar 2002
Posts: 1,140
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Mar 2002
Posts: 1,140
Likes: 1
Michelle, I am one tough cookie, but to be perfectly honest, pulling out the PEG hurt like heck. It was over quickly, but it DID hurt a LOT. The upside was that I, raised to be a proper lady at all times, was able to yell to the full extent of my lung power in a public place, not a stadium. THAT felt wonderful and I figured was worth the short but intense discomfort. It heals up very quickly. The nurse called me the day before to tell me this, and because I always want to know beforehand what is going to happen, I was prepared, which is why I am telling you. I guarantee that Dan will feel terrific to be separated from PEG.

#56356 04-18-2005 11:27 PM
Joined: Apr 2004
Posts: 146
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Apr 2004
Posts: 146
Hi Michelle,

I am just like Joanna in that although I think of myself as a tough cookie, having the peg pulled hurt like HELL ... the good news is that the pain, for me, only lasted a few seconds and then all was well! The hole seemed to close up overnight and what a WONDERFUL feeling to be separated from that peg!!! I remember that when my doctor pulled it (in his office) it made the loudest POP sound that was so loud that it startled my sister who happened to be in the room! Tell Dan that it's really no big deal and if he should have any discomfort - even for a few seconds - it's well worth it!

Hugs, Nancy


Stage IV oral cancer (tongue), T3N2, total glossectomy with right and left modified neck dissection 7/03, rad /chemo ended 11/03
#56357 04-19-2005 12:30 PM
Joined: Mar 2002
Posts: 4,912
Likes: 52
OCF Founder
Patient Advocate (old timer, 2000 posts)
Offline
OCF Founder
Patient Advocate (old timer, 2000 posts)

Joined: Mar 2002
Posts: 4,912
Likes: 52
I can't relate to the last two posts. There are several different styles of PEG's. Mine had a wire in the tube. When they inserted the tube initially, they pulled on the wire and that caused the portion in my stomach to curl up like a pigtale, and that's what held it in. When it came time to take it out (which I did myself) I cut the wire, which cause the pig taill to straighten out, and it just slipped out of the hole, In 2 days it had healed in completely. A second design that a friend had, had a small balloon on the end, which was inflated once the tube reached into inside of the stomach, and this caused the tube to stay in place. To take it out the balloon was collapsed and the tube slid right out. I've never heard of this yanking it out in pain stuff before. What kind of tube brand was it.?...and perhaps given these other simple alternatives, we should tell patients to ask for the simple deisgns.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#56358 04-19-2005 01:11 PM
Joined: Feb 2005
Posts: 663
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Feb 2005
Posts: 663
We have a long way to go to get to the removal stage but to answer a little of Brian's question....

When they put Harry's tube in, the doc took pictures (yes it is very odd to view the parts of your husband that you never really wanted to see) and she showed them to me. There were before and after shots. The after shot showed the inside of his stomach where the PEG goes through his abdomen. It has a cup like shape with the open part of it facing inward. The tube comes out of the top of the cup thing and protrudes through the abdominal wall.

The doc told us that the removal procedure was simply to come into the office and she would give it a healthy yank and out it would come. My assuption being that with just the right pressure, the cup collapses and the aparatus is quickly removed.

I am no doctor but this was just my observation. Why it functions this way rather than the way yours did, Brian, I am at a loss for sure. Maybe something new in the technology or maybe just different procedures or manufacturers?

Cindy


Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
#56359 04-19-2005 02:25 PM
Joined: Jul 2003
Posts: 1,163
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2003
Posts: 1,163
We don't get the latest treatment options up in the Northern woods Brian!!!! It hurt like hell for about three to five seconds. Mine must have been like the one Netteg describes. Sometimes I wish it was back in. So much easier to put on weight. Swallowing is my biggest issue with liquids running through my noise the second worst issue and my voice is terrible.

Danny Boy


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
Page 1 of 2 1 2

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
Jina, VintageMel, rahul320, Sean916, Megm37
13,103 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,925
Members13,103
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5