#56178 03-09-2005 12:34 PM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Yesterday I met with the Rad-Onc concerning re-radiation because of some very tiny margins from the surgery. It was really a relief to know that it is not possible in my case. The cancer is too diffuse and because of the virtual lack of response with the "lifetime" dose I had over the summer it would be too damaging for the remaining structures.
The surgery has pretty well peeled me back to basic structures with all superficial vessels gone, we don't want to blow up the internal ones.
So with my 1mm. margin at the base of the skull we basically sit back and wait for a)victory, or b) another recurrence with probable chemo.
It will be good to have some time when there is no assault on my body...except for the physio, but that always feels better when she's done!
In the meantime, I'll keep visiting the boards and drawing lots of good info and inspiration from all of you.
Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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#56179 03-09-2005 12:50 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Dear Fran
You are such a brave lady, I just wanted to let you know you are in our thoughts.
We wish for the best possible outcome for you , in the meantime enjoy your respite from further assaults, except your Physio!
Take Care
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#56180 03-09-2005 01:30 PM | Joined: Nov 2004 Posts: 90 Senior Member (75+ posts) | | Senior Member (75+ posts)
Joined: Nov 2004 Posts: 90 | Dear Fran,
Just wanted to let you know you are in my thoughts and I am praying for a victory! As Marica said, you are a brave lady and an inspiration to us too. May God Bless you.
Hugs,
Shelley
Caregiver to husband, Ron. Throat cancer, Stage II. No Chemo or Surgery. Completed 35 Radiation Treatments in November 2004.
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#56181 03-10-2005 04:30 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Keep yer chin up! Look for the good!
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#56182 03-10-2005 08:26 AM | Joined: May 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: May 2004 Posts: 218 | Fran,
Nobody knows. I would put it as "if" there is activity. Our prayers are with you and your family. Keep thinking good thoughts.
Robert
SCC 1.6cm Right Tonsil 10/3/03, 1 Node 3cm, T1N2AM0, Tonsil Removed, Selective Neck Disection, 4 Wks Induction Chemo (Taxol,Cisplatin), 8 Weeks Chemo/Radiation (5FU,Hydroxyurea,Iressa), IMRT x 40, Treatment Complete 2/13/04.
41 Years Old At Diagnosis
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#56183 03-10-2005 11:42 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Fran, glad they're going to leave you alone for a bit. I know what you mean. It gets to the point that you just want them to quite picking at you. God bless and you are in my prayers nightly.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#56184 03-11-2005 03:23 AM | Joined: Jan 2005 Posts: 108 Gold Member (100+ posts) | | OP Gold Member (100+ posts)
Joined: Jan 2005 Posts: 108 | Grateful thanks to all of you who set such a positive example to the newbies like me.
There are a million things I have to rejoice in that are available to me right now..strong husband, working partners in faith, a healthy peaceful family who love each other.
So you can see the strong platform on which I will build my recovery. In case I sound too saint-like, I must confess that terror and self pity creep up on me like "Golum" in Lord of the Rings. But what I know about, I can pretty much deal with...I have warriors too!
Thanks again,
Fran
SCC Base of tongue diag. April 04 Stage IV, mets to rt. neck multiple nodes 35 rads+8 boosts First recurrence Jan05. Rt.rad neck dissection Feb02/05. Recurred with bone mets in neck July 05.
Committed to survival with dignity.
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