#55867 11-23-2004 02:01 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Sure would like to say Hi. Hope all is well with everyone? Would be nice to talk.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55868 11-24-2004 12:51 AM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Cathy,
welcome back! How are you doing?
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#55869 11-24-2004 02:23 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Cathy, I would like to wish you and everyone a very, happy, happy Thanksgiving!! I know I have a lot to be thankful for!! God Bless!! Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#55870 11-24-2004 06:51 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Carol and Gary, Thank you and Happy Thanksgiving to you and your family's. Gary I'm doing pretty good have Raynauds now have to stay in bed a lot and keep warm. Hope all is well with
you? I'm also getting ready to move back to Florida with my family. We are moving to Orlando.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | | 
#55871 11-28-2004 01:01 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Have been having pain in my neck today. The nerve endings are really being a pain in the neck.
Hope all is well with everyone?
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55872 11-28-2004 01:15 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Cathy,
Sorry to hear of the Raynauds and the pain you are experiencing. I hope tomorrow is much better for you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#55873 11-28-2004 01:19 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Thanks Uptown. Me too probably the weather up here.
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55874 11-28-2004 01:22 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hey Uptown, You had the same cancer I had in 1989.
I also had cisplatin.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55875 11-29-2004 10:08 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I feel a bond already  ! Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#55876 11-29-2004 01:21 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Thanks Uptown. The other thing is my Dads name was
ED. Hope you are doing okay?
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55877 12-05-2004 01:46 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | How is everyone doing today?
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55878 12-05-2004 03:28 PM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Absolutely happy and grateful to be alive!!! And how are you, Cathy? Thanks for asking, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#55879 12-05-2004 06:25 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Hi Cathy,
Thanks for asking, doing just fine and I hope that you are doing well and keeping warm....
It is a pleasure to meet you..
Jack
..........
Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#55880 12-06-2004 08:26 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | I'm doing my best in keeping warm it's not easy
with Raynauds.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55881 12-06-2004 09:24 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Cathy
Have you got lupus also? I have Raynaulds with my Lupus, but I'm lucky, if I'm careful it doesn't cause me to many problems, I also get uticaria from the cold, wish I lived somewhere warmer....
Sunshine...love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#55882 12-06-2004 12:27 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Amen Helen,
Born and lived in Wisconsin my whole life!! I hate the cold and as far as snow you can keep that to!!! We had are first snow of the season last night. 3" I let it melt off. I was at my chemo session until 3pm.
Carol, Thanks for asking, I'm doing fine
Wife wants me to pick a spring vacation site.
It's harder than I thought. Might want to try
New Orleans in late Feb.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55883 12-06-2004 03:11 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Helen C, No I don't have Lupus. I think Raynauds is enough though don't you?
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55884 12-06-2004 05:18 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hey Danny,
Little off subject, but New Orleans is an AWESOME place to visit.........not to live, but to visit! My mom and her husband lived in New Orleans for 8 years, Metarie was the name of the place. My stepdad's history is there and they lived in the steamboat house that his great-great grandfather built. It sits right on the river and is one of the attractions on a sight seeing tour, amazing house.
There are no words to describe New Orleans, especially the night life. But if you like the concept of voodoo and spirits, and all that type of stuff, you will find the place fascinating. I'm not much of a party girl so I spent most of my time visiting the old cemetary's and the shops.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#55885 12-09-2004 01:34 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hope everyone is doing okay tonight? You all make
me feel real good about myself.
Please write
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55886 12-09-2004 05:42 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Cathy, You should feel good about yourself. After all, you are a Razorback  Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
#55887 12-10-2004 05:38 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Not really a razorback. Moving back to Florida in
June.
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55888 12-10-2004 02:33 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hey Danny - the Caribbean is 85 degrees all year round...
Hi Cathy - doing great - just got a new job and had a clear MRI.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | |
#55889 12-12-2004 01:57 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Gary, That is good news about the MRI. How is the weather out there? It's cold up here going down to the twenty's tonight. I think I may have to hyperneight this week. If it is going to be cold I wish it would snow.
Good about the job too.
Cathy :rolleyes:
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55890 12-15-2004 01:07 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Gary
I nearly missed it .
A clear MRI AND a new job !! Life is good .
Congratulations.
Love
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#55891 12-16-2004 01:43 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Hi Thanks for asking. I'm doing pretty good. The weather is still cold will be glad to get back to Florida. At least I'll be near Disney World. I still have Raynauds in which I have to lay down a lot with the heating pad. Don't have Lupus though. I do like hearing from everyone. Please keep it up. Cathy 
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55892 12-17-2004 01:34 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Where is everyone? 
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55893 12-17-2004 01:49 PM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Hello Cathy
Sorry , are you felling lonely...I hope your day is not going too badly and you are seeing some signs of progress.
I hope you manage to have a good Christmas with your family, I am off to England to see mine on Sunday. We have a grandson Pete will be seeing for the fist time, boy am I glad he is able to!
I hope when I come home to see some good news from you,that you are getting stronger and healthier with each passing day.
Take care
Love
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
| | |
#55894 12-17-2004 03:46 PM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | Thank you Marica. Hope you have a nice Christmas,
and Have a Happy New Year.
Cathy
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | |
#55895 12-17-2004 05:23 PM | Joined: Nov 2004 Posts: 104 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Nov 2004 Posts: 104 | Hi Cathy, You must be getting pretty excited with your upcoming return to Mickey Mouse land, and warm sunshine.  My daughter lives just south of Knoxville and she says it is quite chilly there, too. Up here in the Great Pacific Northwest, it is the traditional winter grey with plenty of that rust making precipitation. Which, of course, is what makes the green grass grow and the mighty evergreens stretch to the sky. Keep warm and cozy. Peace Jack .......... Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides | | |
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