#55098 06-26-2004 01:24 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | OP  Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Ok, this one is only for the males of the group, sorry for being chauvinistic and all, but PC doesnt' exist on this side of the world.
Wondering how many of us "manly men" have had a loss of libido, etc after chemo. Ok, reason I'm asking is that my wife and I are trying toget "pregnant" and recent tests have discovered an extremely low sperm count, like "0". Doc thinks there might be some hormonal change caused by the chemo (Cisplatin) and asked if I had any reduction in libido since the treatments. My immediate response was "no" but then I thought about it, and while I don't expect at the age of 49 to be running around constantly in heat like I was at 17, I think I should be a little more interested than I am. I do remember being more "interested" before all this.
Did blood tests yesterday for testosterone and FHL, will see those results later this week. Asked the oncologist, and his response was that one of the side effects of Cisplatin was a reduction in sperm production. Now he tells me, I asked several times before I started, and he said (and I have the e-mails to prove it) that there should be no problem. So that has me aggravated as well.
ARRGGHH!!! Another hassle. As you can see this isn't one of those things you would discuss with friends or male co-workers, would get bombarded by offers to "help out" Yes, I'm sure.
Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#55099 06-26-2004 03:36 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Bob, First of all, I can't make any offers because I love my wife way to much to ever think of such a thing  . I turned 48 in April so I spent most of the treatment at 47. From the first round of Cisplatin/5FU, I had absolutely no libido and it was many months later before I felt any stirring in the loins. It still does not quite feel the same and I notice a difference in quality and quantity, almost a year later. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55100 06-26-2004 07:36 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Bob,
My experience was the same as Ed's but I am a little further along and it has been getting back to normal. It took a long time. I am 16 months post Tx now. My wife's pretty easy on the eyes so I know that's not it...
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#55101 06-27-2004 08:24 AM | Joined: Feb 2004 Posts: 261 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 261 | Hey Bob! I'm 42. During chemo I had no mojo, not even morning riser. It has come back & works fine, I'm glad to say! My only complaint is no staying power like I used to have, but it is a good 15-30 seconds, ha ha! The wife says she still loves me & it's ok! What else can she say?Maybe something to do with the catheter I had during surgery recovery. I know urination is different. Going in the middle of the night I feel like I have a bottomless bladder! So many changes, huh? Part of our new normal I guess. No idea about sperm count, I had vasectomy years ago after my 3rd daughter was born. Hope it comes back for you guys! See ya! Erik
dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
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#55102 06-27-2004 08:57 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Bob,
Your not alone. I am 54 and was active in that department. Since the surgery lat July 31st I have very little interest. Don't know if it's mental or physical?
Still can't let a good looking woman pass without admiring her. It's in the genes!!!
See Ya Soon,
Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#55103 06-27-2004 04:04 PM | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | Oh, yes, still admire the well built woman, and around here there's a lot of those, and the weather's hot, and the style here this year is daisy dukes and high heels. Also, my wife's a rather physically fit young woman in her mid 20's, so no issue there. Once things get going there's no problem, just a little slow starting these days. I think the recent instances of having to give a semen sample, at the doctor's office, in the exam room, under pressure, with no, uh, visual aids, didn't help any. Kept having flashbacks of a particular scene from the movie "The Right Stuff" and didn't know whether to hum the "Marine's Hymn" or "Up in the Air Junior Birdman." Main issue is the low sperm count anyway. We'll find out the results of the hormone tests end of week. See what the doc has to say then. May explain the results of the ovulation test  Bob
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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#55104 06-28-2004 03:17 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Erik, Being the bluesman I am I believe woody would be more appropriate than mojo!  Mojo would be more like a change in luck...usually from bad to good. From the sounds of the thread, though, a woody could be a mojo, but I don't believe a mojo would only be a woody. Just something to ponder. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#55134 06-28-2004 03:17 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Erik, Being the bluesman I am I believe woody would be more appropriate than mojo! Mojo would be more like a change in luck...usually from bad to good. From the sounds of the thread, though, a woody could be a mojo, but I don't believe a mojo would only be a woody. Just something to ponder. Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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