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#55087 06-23-2004 02:46 AM
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Here's a strange thing that happened to me yesterday. I went in because of some joint pain in my shoulder and hip. They scheduled a bone scan and some x-rays. When they were doing the x-rays, the machine wasn't functioning correctly and they seemed to be just starting it over and over. One once instance the machine was on for at least 30 seconds instead of the quick noise. One time the tech forgot to put film in and after he came back in and put the film in I could hear the other tech say something and the tech replied something that sounded like "he already has cancer". My shoulder hurt much worse the rest of the day.

Here's a question I have. If the machine was malfunctioning, could it harm me in any way? Just curious.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#55088 06-23-2004 05:25 AM
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Ed,

It's strange that you should mention this. I had a similar experience a couple of weeks ago that has had me rattled ever since.

I've had some ongoing back-of-the-neck pain that my oncologist (my primary care doctor) wanted to check out, so he ordered cervical spine x-rays. The machine was obviously zeroed in on basically the same area where I had radiation 15 years ago. The technician seemed to be having problems with the machine and after a couple of shots she moved me to a different one to complete the process. Within a few hours, the lining of my mouth (tongue, gums, back of the throat) was in pain, similar to what I had felt a couple of weeks into radiation. I called my doctor in a panic, and he assured me that the conventional x-ray machines would not generate enough radiation to cause any damage, but frankly I'm at a loss to understand why I had that kind of sudden reaction.

The pain has been subsiding gradually each day, but you can be sure I'm watching that area very closely again.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#55089 06-23-2004 06:44 AM
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The FDA considers unneccessary exposure to x-rays to be an MDR reportable event (Medical Device Report). They consider it to be an injury issue. The same goes for when scans are lost and studies need to be repeated. "Timer" components are considered "critical devices" on x-ray equipment and their failures are investigated seriously as well. Institutions, health care professionals, manufacturers and private citizens can file an FDA form 3500 to Medwatch. See: http://www.fda.gov/opacom/backgrounders/problem.html

It is a little absurd considering all of the ionizing radiation we have received in treatment. Are you actually "injured" from an x-ray or scan study gone awry - probably not.

I must admit I had to laugh when the dentist placed the little lead apron over me a week after I had completed therapeutic radiation in a foot thick concrete, lead lined room (to protect the rad techs).

Diagnostic x-ray energy potentials are very tiny compared to therapeutic. Can this potential cause pain? - I would seriously look for another cause.

The risk is that every x-ray exposure adds to your lifetime exposure total, as x-ray exposure is cumulative.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55090 06-23-2004 06:46 AM
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I have been on the path to implants, and this involves quite a number of panoramic x-rays of the jaw -- the same jaw that had 7 weeks of rad. Has anyone spoken with a dentist about post-tx dental x-rays being a risk? The Expen$ive $peciali$t doing the implants didn't have a clue when I asked him, which shows that the most expensive is not always the best...

#55091 06-23-2004 07:05 AM
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I should also mention that when the government typically considers a "maximum exposure" amount they typically devide the actual number (that would cause death for instance) by 10 to have a reasonable margin of safety.

Joanna, dental r-rays are the weakest x-ray potential you can be exposed to.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55092 06-23-2004 02:53 PM
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In the last five years a new dental x-ray system which uses computer imaging and a in the mouth sensor instead of actual film has been on the market, and my dentist and many others have switched to it. You receive 1/10th the amount of radiation (which was low anyway) and the doctor can email your x-rays to another doctor instantly. Dental images are much lower exposure than CT scans which we all get as a matter of course for years after treatment.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#55093 06-23-2004 04:03 PM
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Thank you, gentlemen, for straightening me out. I don't worry about much, but I got this into my head and it wouldn't go away. I hoped my pursuit of teeth was not exposing me to unacceptable risk, and it appears that is not the case.

#55094 06-23-2004 05:56 PM
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Uptown Offline OP
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I got a call today from the Director of Radiology. She got the email I sent to my oncology nurse this morning and wanted to assure me that the machine only had a computer problem in recording the image. She further elaborated that the image not recording indicated there was no exposure or there would have been an image. The problem was the process that rotates and loads the x-ray tubes.

I told her the tech should have come out and explained to me what was broken and tell me there was no risk and all would have been fine versus the mumbling behind the curtain thing that happened.

I also saw the doctor that was in the hallway just before my last round of chemo discussing with the pharmacist whether the dose would be fatal or not, given my current health (at the time). He remembered me, too, and I was fighting back the urge to ask him if he could recall the "hall talk" as well as I can. eek I am amazed how little I do remember from that period but how well that conversation in particular sticks in my permanent memory bank. I am glad, too, that he calculated correctly!

Ed laugh


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
#55095 06-23-2004 08:11 PM
Joined: Nov 2002
Posts: 3,552
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Ah, yet another reason to wear your Walkman during treatment. My oncologist and first ENT did no talking behind my back. The ENT was mad at me, told me to get my affairs in order, I had a very advanced cancer. The oncologist gave me a page with the statistical probabilities based on the staging with the 38% 5 year survival rate highlighted. No sugarcoating here. At least I couldn't hear worse news anywhere else ;-)
I actually made up my own sound track for chemo and radiation (they had a decent sound system in the radiation cell - it would be hard to wear a Walkman with headphones, not to mention the radiation probably would not be good for it)). I figured it was better than listening to all of those damn voices in my head.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#55096 06-24-2004 04:16 PM
Joined: Nov 2002
Posts: 3,552
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I should also mention that today I read that there is some concern about the amount of radiation people receive getting a multislice CT for instance.

They are really worried about this whole body scanning business that is being touted on the TV. MRI's are by far and away the safest scans as no x-rays are involved.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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