#55019 06-04-2004 04:02 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Everyone,
I have a question, it has been two years since I had surgery and a trach. A few months ago a wound appeared on the right side of trach scar, doctor's immediately cut and biopsied it, came back negative for c. It won't heal, so I am having surgery next Friday so they can look into it further. Doc has suggested possible stitch left over from surgery coming thru, any ideas? Thanks, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#55020 06-10-2004 04:48 AM | Joined: May 2004 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2004 Posts: 34 | Carol - how did this turn out? My sister suddenly had a wound open up on her throat - not at the trach scar site - but above that. Thought it might be due to the radiation but they haven't figured it out yet but there is stuff draining out of it. Oncologist thought maybe is was the cancer so did another CT scan yesterday but that came back with nothing ominous showing - now he is thinking an infection of some sort.
Caregiver/twin sister to Cathy diagnosed with tongue cancer Feb. 2004/partial glossectomy and neck dissection Mar 2004/recurrence may 2004
| | |
#55021 06-10-2004 06:35 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Carol, thanks so much for your reply. I go into hospital tomorrow for surgery on it, he will look deeper into it try to find the cause, hoping it is just scar tissue, etc...Thanks Again, Carol
(I like your name) SMILE!!!!!!!p.s. I have twins, a boy and girl (Steve and Rachel)aged 17....it gets interesting in the teen age years I will say that!I will continue to pray for Cathy and you!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#55022 06-12-2004 04:36 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Hi Carol & Carol! It sounds like you may be dealing with a fistula, although I don't know why one would develop 2 years after surgery, Carol L. It does sound like Cathy's could be a fistula though. Heather also had a partial glossectomy and a fistula developed from the incision in the floor of her mouth. There was also an infection present which caused some of the drainage. But some of it was just saliva draining. Fistulas sometimes are no big deal. Other times they can be a real pain in the ___ and can also be indicative of another problem. Rainbows & hugs,  Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | |
#55023 06-13-2004 11:11 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Hi Rosie, I had the surgery for the trach scar problem Friday, they found stitches left in there that became infected over time....Hoping they got everything this time.....Thanks so much, Carol L.
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#55024 06-13-2004 04:06 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Carol,
I'm happy they found stitches and nothing more. Love, Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
| | |
#55025 06-13-2004 04:17 PM | Joined: Oct 2002 Posts: 546 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2002 Posts: 546 | Carol, I'm so glad that's all it was. Hoping Cathy's story has a happy ending, too. Rainbows & hugs, Rosie
Was primary caregiver to my daughter Heather who had stage IV base of tongue SCC w/ primary recurrence. Original diagnosis August 21st, 2002. Primary recurrence March 18th, 2003. Died October 6th, 2003.
| | |
#55026 06-14-2004 02:24 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks Minnie and Rosie!!! xoxoxoxoxoxoxo Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
#55027 06-14-2004 02:35 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Carol(L), I am really excited to hear your good news! Nothing like a dose of good news on a Friday, huh? Ed 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | |
#55028 06-14-2004 03:44 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks Ed, it was a relief, I can tell you that!!! SMILE!!!!!!!!!!!!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
