#54953 05-24-2004 05:07 AM | Joined: Feb 2004 Posts: 162 Gold Member (100+ posts) | OP  Gold Member (100+ posts)
Joined: Feb 2004 Posts: 162 | Reading about Dan's results makes this post that much harder. But I know from the experience of reading other posts on this forum that good news is important and necessary. While I'm grateful that I can report good news, I just wish it was germane to all of us.
I had follow up appointments at M. D. Anderson Wednesday and Thursday last week. These included meetings with my medical and radiation oncologists as well as a fresh chest xray and CT scan. The imaging was ordered as part of the post-treatment study in which I'm a participant.
Both docs did a thorough physical exam of my mouth, thoat, base of tongue and neck, with the radiation oncologist scoping me as well (which hurt like hell -- the first time being scoped ever hurt and I don't know why). The docs were very happy with my progress and healing. They say I'm doing well. I don't remember all of the radiologist's report from the scans, as it was read to me over the cell-phone as I was driving home by the research nurse, but I do remember the phrase "complete response." The nurse said the results were very good.
So, friends, I'm happy and thankful to say I'm doing well -- so far so good.
-Brett
Base of Tongue SCC. Stage IV, T1N2bM0. Diagnosed 25 July 2003.
Treated with 6 weeks induction chemo -- Taxol & Carboplatin once a week followed with 30 fractions IMRT, 10 fields per fraction over 6 more weeks. Recurrence October 2005.
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#54954 05-24-2004 05:31 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Brett: That is excellent news. Don't feel bad about letting us know as good news is always welcome. I know Dan is pleased with your news and will do what he needs to do as things clarify. Keep us informed as (we pray) your news gets better and better.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#54955 05-24-2004 05:42 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Brett-
GREAT NEWS!! Surviving is a daily journey and each negative test is a milestone! Congratulations on making another one!! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#54956 05-24-2004 06:10 AM | Joined: Feb 2004 Posts: 372 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Brett,
Way to go...such FAB news! You must be feeling pretty good with that news and you deserve to!!
God Bless,
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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#54957 05-24-2004 06:22 AM | Joined: Dec 2003 Posts: 207 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Dec 2003 Posts: 207 | Brett -- never EVER worry about sending us GREAT news like this... we're all very excited for you and hope future tests continue to remain negative...
Eric
Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
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#54958 05-24-2004 06:46 AM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Congratulations, Brett! I am so happy for you!
God bless
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#54959 05-24-2004 06:52 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brett,
I am so excited for you and glad to hear the good news. I hope the future is even brighter. We all must stop and smell the roses because today is the true gift we receive!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#54960 05-24-2004 06:53 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Brett.. thank god.. we could all do with some good news here.. pity it cannot always be so good..Take Care..
prayers..love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#54961 05-24-2004 06:56 AM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Way to go Brett! This board has to have a balance to it and if the good news is hidden then that balance will be gone. I wouldn't want to stay on the boards at all if it were all bad news. This past few days has made me question being a part of the board to be honest, the results of some of our tests has me sad and scared. But, I need the people on here so here I am.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54962 05-24-2004 07:43 AM | Joined: Apr 2003 Posts: 148 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Apr 2003 Posts: 148 | Congrats Brett! I know how nerve wracking it is to go to the appointments, and the elation you feel that all is going well. Keep posting the good, we need to hear it!
Sincerely,
Lisa
Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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