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#54726 04-21-2004 08:29 PM
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This may be a topic more for the financial/insurance section, but I was wondering if some of you could pass along some advice on dental issues...

I'm about three months post-radiation and had a good teeth cleaning last week (which felt good in some respects but kind of beat me up in others)...

I was pretty "negative-active" with dental care in my 20's, and I went from being a no-cavity guy growing up to having lots of them now that I'm in my 30s, even before radiation/cancer diagnosis.

My dentist told me today that I have at least some type of cavity in all of my teeth except for four! Yikes! Some are bad and obviously need repairs/fillings/inlays. Others he shows me on the x-ray and frankly I don't know enough to know what it is I'm looking at. "As you can see, there is one here and here and here..." Uh, OK. I can't really see it, but you're the dentist...

Well, to make a long story short, he presents me today with his "plan" for fixing me all up. It requires seven visits (my worst nightmare!) and when finished will cost me something like $5,700 for all the inlays and fillings and what not. He's call it a "conservative" approach. The problem areas will be filled with porcelin, the others with a composite filling material.

It's not like I'm already in over my head enough paying for all the cancer treatments (even with good insurance I owe more than $3000 to doctors and hospitals right now, plus I lost an income source for the months I was in treatment)...

My current dental insurance has an 80-20 deal but will only cover up to $1,000 per year. I can't even come close to affording to $4,700 additional or whatever (considering I also had to buy a new car during my radiation treatment time because my IMRT treatments were done 90 miles away).

At the same point, since I've got some dry mouth issues, can I afford NOT to have this work done soon? Is he taking advantage of me by wanting to deal with every little imperfection with me teeth or helping me since I'm a cancer survivor now in greater danger of having tooth decay/serious dental issues.

I respect this dental office a lot -- they were the ones that first told me to "get that checked out" when I came in with a sore on my tongue. But, sheesh, who's got $5,700 lying around?

I'm baffled -- and frustrated I can't make a decent enough living to provide for my family and pay the bills... (and ticked at myself for my lack of dental care the past 5-10 years... arggg...)

Any thoughts from folks who have been down this road before? The good news is that I at least still have all of my teeth, though my mind at the moment is another story...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#54727 04-22-2004 01:48 AM
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Hi, I have had many dental bills since diagnosis, surgery and radiation, it is an ongoing thing, but I am trying to save my teeth. I have charged some of it (2 root canals) with a Visa card and have a monthly payment plan for the rest, maybe try that. At least you can get your dental work done. God Bless, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#54728 04-22-2004 02:29 AM
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Carol/Az
My Radiation Oncologist wrote a letter of medical need to my major medical insurance company. My dental bills, not unlike yours were in the thousands. It has been over a month since my dentist filed her claim in my Major med and they have yet to pay, but, I feel thay will eventually will have to pay, at least a large percentage of the total cost
Darrell


Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
#54729 04-22-2004 04:01 PM
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I would get another opinion and evaluation from a general dentist. Composite fillings last forever and a day, and are not that expensive. Unless you are doing anterior full crowns there is no reason these days to use porcelain. I think that this guy may be taking you for a financial and diagnostic ride. Get another opinion from someone else just for peace of mind. Don't mention the first guy to the new guy. Ask for a treatment plan in writing, and when it's all done ask for your x-rays. Don


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#54730 04-22-2004 07:53 PM
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Thanks, Brian, I'll definitely jump on that...

Are you saying go to another dentist and get another set of x-rays or just send you the first set that were done before? I guess I'm concerned about getting yet more radiation in my mouth...

I've already got the first guy's treatment plan in writing... I can throw that in as well... my teeth aren't pretty in places, that much I know...


Tongue cancer (SCC), diagnosed Oct. 2003 (T2 N0 M0). Surgery to remove tumor. IMRT Radiation 30x in Dec 2003 - Jan. 2004. Recurrence lymph node - radical neck dissection June 2004. Second round of rad/chemo treatments ended Sept. 2004.
#54731 04-23-2004 04:58 PM
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Hi Az,
I also had my oncologist intervene for me with the dental work I needed done before radiation. He wrote a letter stating that it was a medical neccesity and my dentist had a phone conversation with an insurance rep and the deal was done. I had approx. $6800 worth of work done and it didn't cost me a penny.
Hope this helps,
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.

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