#54079 11-24-2003 06:08 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Hello everyone, Is it possible to get "scars" on your tongue after radiation? On top of my tongue I have two small spots, about the size of a tiny pea, that are pure white. They are not raised, not ulcerated, not lumps, etc. Just a colored spot, if it were on my knee I would think it was a scar. Any ideas?
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#54080 11-25-2003 04:49 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 52 | They could be a number of things from scar tissue, to mucocitis sores that are about to let themselves be known again, to a minor outbreak of Candida (this can be verified by trying to scrape them off with your finger nail). While they are probably nothing serious, (my mouth was full of all kinds of strange occurrences for the first year after radiation, none cancer) it never hurts, if only for peace of mind, to have your doc take a look to be sure. But in general, be prepared mentally for the TONS of weird abnormalities that come with post treatment recovery. Each one will jerk your chain mentally, but in most cases they are nothing. Having said that, never hesitate to get yourself over to your doc for a look-see.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
#54081 11-25-2003 06:12 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | OP Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Thanks Brian, I have a check up with my otolaryncologist Dec. 4th and I'll see what he has to say. I have learned that the mucositis sores can re-visit after radiation, but why is it so hard to get one to heal? Are there any secrets? I had the sore on my tongue biopsied so we know it's not cancer, but I sure wish it would go away. By the end of the day it's so sore that I don't talk as much as usual. It's gotten smaller, but is still there. You are certainly right about so many unusual things going on in the mouth post radiation treatment. I look every day at parts of my mouth that I never cared about for the past 42 years. I've never given my mouth so much attention! Thank you for the advice and have a great turkey day.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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