| |
#52700 08-14-2002 05:24 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Make no mistake, this is NOT a complaint. I am One Lucky Woman to be on the other side of all treatment. I would like to know, however, about how long this saliva, which I am sure I could use as wallpaper paste, will last. In my case, it seems to go steadily for three days, take a couple off, then come back again.
And one other request: If the answer is "6 months" please do not tell me. (grin)
Joanna | | | 
#52701 08-19-2002 06:06 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Jun 2002 Posts: 206 | I too have Saliva that seems thick, plus I can't seem to get it off my lips with my tongue like I used to. It started not long ago and I don't know how long it will last. It is good for the teeth as I find mine brake off so am glad for it. I go around with a paper napkin to clean it off my lips. Wish you luck Cath
Cathy
SCCA Stage IV diagnosed 01/90
base of tongue with 1/2 removed.
With neck resection, radiation and chemo
| | | 
#52702 08-24-2002 06:42 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | The answer, if it is not a fluke, is 22 days! Last treatment Aug 2nd, real saliva (reduced amount) and functioning taste buds Aug 24th.
I am one Extremely Lucky Woman!
If you are offered IMRT, go for it!!
Joanna | | |
#52703 08-24-2002 01:11 PM | | Anonymous Unregistered | | Anonymous Unregistered
| Joanna,
HMM...22 days. My mother's last treatment is Aug 30, so we'll see how she is doing around Sept. 22. I hope better because it has gotten so bad I'm afraid she is going to choke. She always feels like something is stuck in her throat.
Wish she could have had IMRT but lymph node involvemnt nixed that. Glad to hear it worked for you and best wishes for continued health improvement. Keep us updated - we need the good news!
Cynthia | | |
#52704 08-25-2002 06:00 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Cynthia, I hope this is the case for your mom too. My wallpaper paste was just about continuous and many nights I could not sleep for having to wipe out my mouth. I felt like I was drowning. I would rate this as much worse than even the radiation burns to my neck and face. I will say that it did taper off to some extent before ending, so it wasn't a complete instantaneous reversal. Please tell your mom there IS an end to it, and the end appears to be sooner rather than later.
Joanna | | |
#52705 09-09-2002 05:47 PM | Joined: Aug 2002 Posts: 5 Member | | Member
Joined: Aug 2002 Posts: 5 | HI JONNA what is IMRT its been three years for me i still have some taste buds and all the wonderful saliva everyone talks about.need ancwers how to get rid of the stuff | | |
| Forums23 Topics18,168 Posts196,927 Members13,104 | | Most Online458
Jan 16th, 2020 | | |
|
| |
