#5228 03-27-2005 07:23 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Hi Does, Anyone know of a good Cancer Doctor in Eustis Florida or Orlando? Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#5229 03-28-2005 01:25 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 482 | Cath, I don't know of a particular doctor, but if you call a cancer center, perhaps they can refer you. God bless.
Regards, Kirk Georgia Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#5230 03-28-2005 03:05 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Aug 2004 Posts: 100 | I am not sure how far you are from Venice, Fl but my friend saw Dr Orman From Florida cancer specialists center. He was great and his radiologist was Dr. O'connor. They were a great team.If your close by there, I could find out more info. Let me know & God bless!
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#5231 03-28-2005 05:41 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Little P. Steve Orman used to be my Doc. When I lived in Sarasota. Just to let you know the cancer has not come back I'm just looking so that I can have my monthly check ups. Thanks for your help. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#5232 03-28-2005 06:47 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Aug 2004 Posts: 100 | Cathy,
Thats wild that you had the same doctor. Rod lives in Englewood, florida. Anyway, good luck with your search & God bless!
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#5233 03-28-2005 10:28 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Isn't though. How is Rod doing? I know Englwood very well? Spelling might be off. I had Steve Orman back in 1990. Went to Venice to have my surgery with Dr. Tyler. He saved my life. Keep in touch Maureen. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#5234 03-29-2005 02:28 AM | Joined: Aug 2004 Posts: 100 Gold Member (100+ posts) | Gold Member (100+ posts) Joined: Aug 2004 Posts: 100 | Cathy, That's really neat! How long have you lived in Florida and how close are you to Englewood? Small world. Rod is doing very well. Tx ended in July 04. We were just talking about how March 31 will be 1 year from his diagnosis. He saw an ENT who diagnosed him & then Dr Orman. He was in Venice hospital to have his peg tube put in. They kept him overnight to start chemo the next day.He was stage 4 also but did not have surgery, the docs opted for radiation & chemo concurrent. His tumor was large on his tonsil and I think to operate would have caused a big deformaty.He is doing well now. He saw the ENT who first diagnosed him in Feb and the doc couldn't believe how good he looked. So I will continue to pray for him that this continues. He is having a hard time gaining weight though. He was small to begin with (145-150_ and went down to 110 even with the peg. I think his anxiety helped with that also. But he's eating almost everything now except bread.ANd always carries his water bottle. Anyway how are you and if you don't mind me asking since it was so long ago, how often do you still get checked? Maybe even Dr orman could refer you to someone? Let me know what you find out! God bless! Maureen
maureen (friend to Rod SCC tonsil diag. Mar 04 stage 4 -concurrent rad. & chemo) Finished tx July 04
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#5235 03-29-2005 05:41 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Hi Maureen, I lived in Sarasota for 25 years, then moved to Mobile Al. lived there for 9 years, and now up here in Little Rock, Arkansas for 2 years, and now moving back to Orlando, Florida. I am having my mouth looked at once or twice a year by an excellent dentist with experience in diagnosing cancer, and then once every year or so the University ENT checks me. However, since I have not ever had a reoccurance there is less concern. My cancer was on the left side of my tongue, and I thought it was a cancur sore so was stage 4 when the correct diagnosis was made. Dr. Orman was recommended by a very experienced cancer Doctor in Washington, D.C.who was Dr. Orman's teacher. I was operated on by a Venice surgeon, who Dr. Orman sent me to, followed by radiation. I had had chemo while trying to find a doctor as none in Sarasota would operate on me!
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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#5236 03-29-2005 06:30 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Hello folks, I think it is best if you don't use names of doctors here in the forum. Rather, use a private method to communicate.
Thanks
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#5237 03-29-2005 07:17 AM | Joined: Jun 2002 Posts: 206 Platinum Member (200+ posts) | OP Platinum Member (200+ posts) Joined: Jun 2002 Posts: 206 | Hi Mark, Thanks I will Do that. Cathy
Cathy
SCCA Stage IV diagnosed 01/90 base of tongue with 1/2 removed. With neck resection, radiation and chemo
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