#50370 08-27-2007 05:30 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | I was surprised to see a short segment on the local evening news today about the dangers of oral cancer. Very brief and they stated there were "half a million" new cases every year. Also that while tobacco was a causitive factor, sunshine was also a related factor - ???
I will e-mail them tomorrow with some more accurate facts, but still, it was the first time I have ever seen anything like that.
One small step. | | |
#50371 08-27-2007 05:56 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | There was somthing on our news too !! But our was tobacco related and it is late i dunno if I heard sunshine ..but i will look as well !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#50372 08-28-2007 04:13 AM | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 |
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#50373 08-28-2007 11:56 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | This is so frustrating. I know Sturgis and met him at MDACC 5 years ago when I was there doing an interview for NBC. I spent quite a bit of time with him telling him about the HPV16 virus the work at JH and what we were seeing. While interested, he kinda blew me off with a "it isn't a proven situation as of yet" attitude. Others at the center were way more receptive to my alarm and here he is publishing a paper like this is something new. This is what OCF has been saying for years, has been previously published by our board member Maura Gillison at Johns Hopkins, and is nothing more than a "me too" paper. What next will they put out to get their requirement to publish or perish requirement, that young non smokers are the demographic? Sunshine is only a factor in lip cancers..... and they are a very small part of the total number of oral cancers.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#50374 08-28-2007 06:13 PM | Joined: May 2007 Posts: 666 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 666 | Brian I understand your frustration, given the history. It is a typically NIH reaction.... Not Invented Here  (with appologies to the real NIH). On the other had you know the real genesis of this and since he now toots the same horn you might want to take advantage of that? Sometimes a story needs to be told again an again... M
Partial glossectomy (25%) anterior tongue. 4/6/07/. IMRT start @5/24/07 (3x) Erbitux start/end@ 5/24/07. IMRT wider field (30x) start 6/5/07. Weekly cisplatin (2x30mg/m2), then weekly carbo- (5x180mg/m2). End of Tx 19 July 07.
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#50375 08-29-2007 12:42 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Everyone that gets out the right information in as many venues as possible is helping to over all cause. That is the bottom line. (I was just venting since working towards something for years where a country boy like me was able to connect dots that others were dismissing is a little frustrating). He should at least get the part about males and females correct though. Females in this new sub population slightly outnumber males, not the way around as he is stating it. But it cetainly isn't my place to tell the guy with all the initials after his name that he hasn't even read the literature correctly. I should stay focused on the fact that information that will help people is getting out there.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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