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#49672 12-03-2004 01:04 PM
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In 2005 OCF will be involved in several very public events. A walk to raise awareness in VA (thank you Minnie for taking the reigns of this idea with your 400 cheerleaders), numerous free public screening events in cooperation with dental schools all around the US on the weekend of April 9-10, and a celebrity fundraiser golf tournament to be held in Malibu in memory of Bruce Paltrow, benefiting OCF. We need to develop some of those catchy sayings that get tied to organizations and events. Breast cancer has "Walk for a cure." Lance Armstrong has his "LiveStrong" mantra on everything, etc. OCF needs to have a similar set of cut lines that we tie to ourselves. With all the creative minds out there, I thought I would post this so people could put their ideas into the project. We have some that ring nicely for our newly diagnosed patient materials such as "Strive to Survive & Thrive


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
#49673 12-03-2004 06:25 PM
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I almost posted something like this Brian but wanted it to come from you. I agree with Brian that we need one saying, one color, one THING that will make people think of Oral Cancer and what we are trying to accomplish.
I love the breast cancer theme "promise", the promise to not stop until a cure is found. We need something like that, even if we piggy back on someone elses idea, connect ourselves in a way that also compliments their campaign. I have tossed around a few ideas but I am simply not the creative type. I like the word "Believe". We could use that to hook onto the "Promise" campaign. We "Believe" there will be a cure someday. We can achieve if we believe. Something like that. I also like the idea of having something that is related to our mouth, voice, words, etc. It's where oral cancer hits us. Raising our Voices, Voices Raised, something like that.
I think we need a color also and Brian is looking into any that are left over, not already being used.
Ok everyone, shoot out your ideas, brainstorm, this could be tons of fun and at the same time make history.
Minnie


SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
#49674 12-04-2004 03:53 AM
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Hey Minnie, I like the Voice theme. I will put on my thinking cap. Also, when I went to the Relay for Life, they were selling little bows for each type of cancer, I bought the oral cancer one and it was a burgandy or dark maroon color. Not sure where the color came from, but that is what they had for us. I know breast cancer has a pink bracelet that says "Living in Pink", and Bone Marrow/Leukemia has the blue one that says "Life is a Team Sport" (I really like that one). It would be awesome if we had one! Thanks for all that you are doing, looking forward to April in Virginia!!! Love, Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#49675 12-04-2004 02:50 PM
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The official oral cancer awareness "ribbon" colors are red/burgundy and ivory. There is another site that is selling the pins. I can only assume some of the monies earned go to the support of the site/organization...

I really like the Voice theme, too.


Caregiver to Uptown/Ed, SCC Stage IV, Base of tongue - Completed Chemo (Cisplatnin/5FU) and 45 days' simultaneous Radiation 10/08/03
#49676 12-04-2004 04:46 PM
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Well, let us start throwing out ideas. I agree with Minnie, Carol and Uptown Girl with a theme involving "Voice". Sometimes the least creative idea can jump-start the real artists. wink "Voices of Promise".

Jack
..........
Dx 1/15/97 SCC rt. tonsil met to rt lymph node Stg IV, Srgry 1/23/97 tonsillectomy & mod radical neck dissection, Radiation 35 trtmnts both sides

#49677 12-04-2004 06:31 PM
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"Voices for Life, or Voices in love" are also good. It would be great to have our color and theme saying. I wear the LiveStrong bracelet everyday...would love to wear one representing oral cancer specifically!
Thanks Brian for all the great things you think of!!
Debbie


Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
#49678 12-05-2004 02:45 AM
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Voices For Hope


Was Primary caregiver to my mom who had stage IV, SCC, Supraglottic with Mets to 4 nodes. Diagnosed Feb 04, died unexpectedly from complications from treatment December 17, 2004.
#49679 12-05-2004 05:45 AM
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Voices for tomorrow


SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
#49680 12-05-2004 07:02 AM
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I too, like the Voices idea, but feel it has more oomph with "of" or "in" instead of "for". It has a more positive ring for for me. So like Jack said Voices of Promise, Voices of Hope, Voices of Tomorrow? Voices of Promise and Hope for Tomorrow?


Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
#49681 12-05-2004 07:07 AM
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Somewhat off topic...Just because it is in my nature, and I occaisionally slip into my Englisp, Voithes of Promith? Please, no one be offended, I am playing here! laugh


Lisa
SCC of Tongue Stage 1 (T1,N0,M0)
partial glossectomy,modified neck dissection 4/14/03
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