#48764 09-12-2007 05:32 AM | Joined: Mar 2006 Posts: 114 Senior Member (100+ posts) | OP  Senior Member (100+ posts)
Joined: Mar 2006 Posts: 114 | Just wanted to say thanks for all the great suggestions from everybody - I really appreciate the input. It has gotten a bit better in this third week of the cycle - but I start over on Monday with another cycle so I know it's coming back. At least now I have some things I can try. They were handing out little Aquaphor tubes at my CC and that does help at least keep the lips moist although it doesn't seem to heal the blisters.
thanks again. I just love this forum and all the help from folks who have LIVED it.
thanks
Steve
Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
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#48765 09-12-2007 03:50 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Steve, at the risk of being "dressed down by the OCF gods", I would suggest that you try real aloe vera [break off a piece from the plant] on those blisters. Ask your Doc first, but if he shrugs his shoulders, it's worth a shot. Aloe Vera [the secretions from the plant] is known to help heal burns, open sores, etc. If your Doc o.k.'s it and you can't find it, I have a hugh pot growing in my kitchen and I can send you some to pot up and grow. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#48766 09-12-2007 04:04 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Amy,
Mom used that as well and she really found it helped relieve her.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#48767 09-12-2007 04:06 PM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Brenda,
I've never heard of anyone else referring to the little men in the mouth. My mom always uses that term. Scared her best friend recently-she thought mom was losing her mind! LOL!!
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#48768 09-12-2007 10:37 PM | Joined: May 2007 Posts: 632 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: May 2007 Posts: 632 | Those 'little men' can be SOOOOOOOOO vicious at times!! The gel knocks them off their perches and the knives fall out of their hands for a while-
LOL!
Tell your mom we'll beat the b**gers!
Brenda
Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
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#48769 09-13-2007 01:48 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Can't wait to share that with her!
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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#48770 09-13-2007 11:36 AM | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Steve, I had the sameChemo drugs and also had 5FU with a pump. What I did was to rinse with a salt water solution 4-5 times a day while on 5FU and the nect week and I had only minor sores which were not painful at all. I did this each week i was on 5FU. I mixed 3 spoonfuls of salt to 2 gallon of water. Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
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#48771 09-13-2007 12:53 PM | Joined: Apr 2006 Posts: 378 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2006 Posts: 378 | Steve, Jack found lidocaine gel RX helped too. Regards JoAnne
JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
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