#48308 06-12-2007 07:16 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Karen, I do not have the right words, but I am praying for your Dad and your family....Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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#48309 06-12-2007 10:36 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Karen, I am so sorry things are going so poorly for your Dad. As to him pulling out the trach because of mucous, I can understand. I have had a permanent trach since 2001 and still cough up huge blobs of mucous several times a day though my neck. If I don't clear it, I couldn't breath. It's a survival instinct. I don't know what else to say. It's all so sad. Will they still try the therapy if they can get things under control?
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#48310 06-12-2007 10:42 AM | Joined: Sep 2006 Posts: 493 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Sep 2006 Posts: 493 | karen,
I'm very sorry to hear that your father's cancer has progressed so far. I lost my father to cancer a little over a year ago. And someday I may be in your father's position. All I can say is my father knew I loved him on the day he passed and my son knows that I love him each and everyday we have together now. Your father knows how much you love him.
Stay stong and I'm praying for you both right now.
Tim
Tim Stoj 60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
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#48311 06-12-2007 03:34 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | karen,
This is a horrible disease ..that affects so much more then our bodies.....Sadly ..to me .that is the easiet part of it. It is what it does mentally and emotionally to us and those who love us that are soooooo hard to deal with . I am sending you my prayers and thoughts to you and your dad and the rest of your family. Dont ever think for one minute that you coulda done more..you have gone so far and above and you have amazed us all ..but even more ..I am even WILLING TO BET MY LIFE ON IT ( which isnt so smart right now with chance of reccurence) ..THAT YOU HAVE MADE YOUR DAD SOOOOOO EXTREMLEY PROUD !!! So may you find comfort in that .. Hug your children and hug your dad ! And I am sending you ((((HUGS))))) I wish i could say somthing to make it go away for you , you have been through so much ,,Just know that we here are all thinkin of you and praying for you and your dad and you entire family.
Shar
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#48312 06-15-2007 04:44 PM | Joined: May 2007 Posts: 2 Member | Member Joined: May 2007 Posts: 2 | Karen,
I don't usually post...just read. Having followed your story I feel as if I know you and your dad and was compelled to write. I am so sorry for what you, your dad and family are going through. I will be thinking of you and saying a prayer for you both. He is very lucky to have you as his daughter and friend.
Michelle
Daughter of mom, Charlie, 64, Stage III/IVa left tonsil and one lymph node. Cisplatin with pump and 30 radiation treatments
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#48313 06-18-2007 05:51 AM | Joined: Dec 2006 Posts: 21 Member | Member Joined: Dec 2006 Posts: 21 | My heart goes out to you both, through the tears running down my face after reading your post. Please know that we all care, and are praying for you and your family.
Betty
Squamous Cell Carcinoma of tongue, stage II due to size >3mm, nothing seen in neck on CT scan. Radiation started in Jan 07. Completed 2/26/07. Recurrance confirmed 8/07.
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#48314 06-18-2007 07:55 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2007 Posts: 794 | Karen, I sent you a PM. God bless you and your family.
Donna CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
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