Previous Thread
Next Thread
Print Thread
Page 1 of 4 1 2 3 4
Joined: Sep 2006
Posts: 149
trt Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Sep 2006
Posts: 149
Rad to one side of the face. tomotherapy.
Started feeling nauseaus after breakfast (small).
@#$@#$. I guess I am not going to be lucky and normal for the first few weeks.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
It's awfully soon for radiation side effects. Talk to your RO or MO about it. Are you getting adjunctive chemo too? If not then it might be anxiety. I took anti-anxiety meds and it sure helped me to be "normal" for the first couple of weeks.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
Joined: Sep 2006
Posts: 149
trt Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Sep 2006
Posts: 149
I talked to the nurse who talked to the doctor.
Doc said it's not due to radiation.

I did have flu symptoms upon starting rad. maybe it's that. I am on anxiety meds and don't feel too anxious. I was very anxious before. It does not seem as scary any more.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Sep 2006
Posts: 149
trt Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Sep 2006
Posts: 149
Got up today. Pretty tired. Dizziness/Nausea (no vomiting), fullness in throat are worse. Had trouble getting up. Did not feel like eating. Much worse than yesterday.
I am not getting chemo.

Ear not equalizing on the Tx side. I wonder if that's related.
Since Rad Doc feels it's not from Rad Tx, will see another Doc tomorrow.

I wish someone would prescribe something

Tongue is becoming sensitive with white covered sores? canker sores? on the sides.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Oct 2006
Posts: 160
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Oct 2006
Posts: 160
Sorry to hear you're not feeling well. Do they have you on any antibiotics? I'm not a doc, but it sure sounds like you might have an infection. Hope you get the help that you need. Take care.


Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
Joined: Sep 2006
Posts: 149
trt Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Sep 2006
Posts: 149
I am not on antibiotics. I managed to see a doc (pa) today finally.
Prescribed zofran and something else for dizziness.
She thinks it IS from radiation and that the ear drum does not look normal and that it can cause nausea. I can feel it does not equalize.
They have tubes they can insert into ears but typically do it after Rad.

Is it weird that the Rad Doc would not prescribe anything or is it typical?


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Jul 2006
Posts: 446
"OCF Canuck"
Platinum Member (300+ posts)
Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 446
I think I would be leaning towards what the rad Doctor says in this situation. They are MUCH more familiar with the side effects and timing of them than someone outside of the specialty.

It is VERY eary for you to be having severe side effects. While the sores in the mouth aren't that unusual ( I began developing them at 5 days) the rest certainly sounds more like an infection than anything. If it's a flu, its viral, and antibiotics wouldn't help anyway.

Once you start to really feel the effects of rad, I'm afraid you won't be trying to guess what they are...they are profound, and miserable. I have never been as ill as I was during radiation.

I hope you can get feeling a bit better quickly. The radiation is tough enough without a flu or some other bug adding to it
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
Joined: Oct 2006
Posts: 160
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Oct 2006
Posts: 160
Was glad to hear you got to see a doc. A friend of mine had a problem with her inner ear, and it had caused nausea and dizziness both. Hope you find some relief. Take care and keep us informed of how you are doing. I agree with Wayne, treatment is tough enough without other problems to deal with.


Dx3/20/06 SCC,BOT,1N Tx:5cycles Carbo/Taxol, Rad:35x, brachytherapy:6x, completed 7/24/06
Joined: Sep 2006
Posts: 149
trt Offline OP
Senior Member (100+ posts)
OP Offline
Senior Member (100+ posts)

Joined: Sep 2006
Posts: 149
I felt so miserable on Fri, that I skipped a treatment. Really fatigued, weak, scared, dizzy nauseaus; there was no one to drive me. I had thoughts of stopping the treatment completely.

I feel the Rad doc is not trying to help me and I am too weak to look for other docs, etc.
The Rad doctor is doing nothing at all and telling me to see someone else. She saw me for about 20 seconds.

Is the inner/middle usually an infection.
If an infection can it be treated with penicillin.


I saw a surgeon (pa) who prescribed zofran etc.
I am a little better but dizziness etc is still there.


Dx 10/06 Adenoid Cystic carcinoma; Stage I. Soft palate/minor salivary glands.
Tx surgery 11/06 Tomotherapy (targeted IMRT) 3/07
Joined: Mar 2007
Posts: 21
Member
Offline
Member

Joined: Mar 2007
Posts: 21
TRT,

If your RAD Dr is truly only showing you 20 seconds of concern I would definitly start looking for another Dr.. My God, whatever happened to a little COMPASSION!

Jon

Page 1 of 4 1 2 3 4

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,930
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5