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#46588 03-04-2006 11:35 AM
Joined: Jan 2004
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Joined: Jan 2004
Posts: 20
It has been since June 1999 when I had my operation and if it wasn't for the nose feeding tube first....then a switch to the "G" tube in my side because of the radiation, I would not be here now. Those things saved my life. The radiation is very rough on the throat and swallowing and the last thing he'll want to do is swallow towards the end of radiation. Please get something nourishing into this man and FAST...Today, I eat everything in a blender with less than half a tongue but I am here and kicking in 2006. I will keep you in my prayers....Flo

#46589 03-09-2006 12:32 PM
Joined: Feb 2004
Posts: 218
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Joined: Feb 2004
Posts: 218
Cindy,
Please keep in mind that the first two weeks following the end of radiation are often the toughest. Given your Dad's condition, you need to figure out how to get nourishment in him so that he can recover more quickly from the treatments, especially in the next few weeks.

I agree with the others on this message thread, you need to talk with the nutritionist at your Dad's facility, or another doctor. Often facilities will have an oncological nutritionist who specialized in these types of problems. At the very least, he should be getting some hydration intravenously if he's unable to swallow and has no feeding tube.

There are a number of possibilities for improving his nourishment and you may have to create a fuss to get somebody's attention. Good luck. - Sheldon


Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
#46590 03-12-2006 10:53 PM
Joined: Jul 2003
Posts: 1,163
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Joined: Jul 2003
Posts: 1,163
Hello All,

Just wanted you all to know I changed my mind and will give Erbitrux a try starting tomorrow. It was approved by the FDA in early March.

Have lost 80% of my hearing in my right ear. A fluid build up from the tumor in the right tonsil region. Feel dizzy at times and tired.
Cross your fingers for me. I'm hoping the side effects are not to bad but I am worried about them.

All my best, Danny Boy

Brian, Could you move this to it's own posting?


Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.

Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06

Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
#46591 03-13-2006 02:33 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
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Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
You may wish to look at Nan P's thread in "medication, treatment and procedures". There are some similarities and thoughts that may help you.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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