#46507 02-09-2006 04:43 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Since I promised some folks I would update: John's surgery was 7 hrs., the Docs said he did very well considering the previous surgery and radiation. More lymph nodes removed, more tongue removed, some jaw bone removed- titanium implant and free flap graft from right arm and tummy. New Peg, trach, and a couple of other "invasive tubes" I didn't quite understand but had to sign a permission slip for after he arrived in recovery. Apparently the next 24 hrs. will be critical as to whether the flap takes.? We've been up since 4:30 am- so night-night- guys. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#46508 02-09-2006 06:46 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hang in there Any,
Lets hope the 2nd time around is the one that will end this diaease. all my best.
Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#46509 02-10-2006 02:48 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Thank you for the update Amy. You and John were in my thoughts all day yesterday and I'll also be holding you in my thoughts today. Seven hours actually doesn't sound bad for such extensive surgery. I second Danny's wish that this time they got every last bit of the cancer!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46510 02-10-2006 02:57 AM | Joined: Mar 2004 Posts: 417 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2004 Posts: 417 | Myself, my family and my church family have you in our prayers, Amy, and you as well Danny.
Darrell
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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#46511 02-10-2006 04:13 AM | Joined: Jan 2006 Posts: 15 Member | | Member
Joined: Jan 2006 Posts: 15 | Thanks so much for updating us, Amy. I know today and tomorrow will probably be tough and my heart is with you and John. When we were watching and hoping for my flap to take, they told us they wanted to see pink. So we had a motto that may apply to you: Think Pink!
Hang in there and get your rest.
Ruth
Ruth E. Moran
dx minor salivary gland adenocarcinoma 4/99, resection 5/99;
rec 1 lymph 2 cm 7/03, mod. rad. neck resec. 7/03;
rec primary 10/05, resec, pec flap, PEG tube, IMRT 2&3/06, Osteonecrosis right mandible removed
1/08 metastatic lung cancer, 3/08 clinical trial MD Anderson
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#46512 02-10-2006 11:57 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | Amy... thanks for thinking of us ...I know you are exhausted...try and get some rest.
Marica
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#46513 02-10-2006 04:53 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Today went pretty well. John's blood pressure keeps going down lower than they like, so they are medicating for that. They gave him a little "sedation vacation" to wake him up enough to ask if he was feeling any pain- he nodded no, so back under he went. His primary surgeon noted in the chart that the flap looked "awesome", and the nurses were laughing about that being a new medical term. The plastic surgeon came by tonite and told them to remove the probe that was checking the temp in his mouth because everything looked pretty good. He'll still be in SICU until Mon and then I can be there with him. Thanks for your support, guys. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#46514 02-11-2006 12:13 AM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Amy
Am so pleased to hear that so far everything is going according to plan.
Am thinking of you both
Sunshine.. love and hugs
Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#46515 02-11-2006 02:19 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Very good news so far! Lots of people are rooting for you....Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46516 02-11-2006 05:26 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Good to hear Amy, If he says he feels someone holding his hand, It's me and several other internet friends! (by the way you might feel it too) 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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