 
#46112 11-10-2005 04:39 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Good news Michael! Tell that doctor not to be so honest! Hope is mighty precious and loosing all hope is useless. There ARE things better left unknown. Now you have even more things to try to ignore or forget....... :rolleyes:    :p
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#46113 11-10-2005 07:15 PM | Joined: Jun 2005 Posts: 6 Member | | Member
Joined: Jun 2005 Posts: 6 | Congrats Michael and Seth also on the great Check Up. Hope to see you soon.
K&K | | |
#46114 11-11-2005 05:16 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Feb 2005 Posts: 2,019 | Good news Michael, now relax and enjoy yourself for a while! Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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#46115 11-11-2005 08:32 AM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | Hey Danny, might as well give up on that fund raiser and send me the money! | | |
#46116 11-11-2005 09:05 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Michael and Seth.....awesome news!!!!!!!!!Enjoy Life!!!!!!!!!!!!!!!!!!!!!One day at a time!!!!!!!Take Care, Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#46117 11-11-2005 09:09 AM | Joined: May 2003 Posts: 928 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2003 Posts: 928 | I am very happy for you and Seth on your good test results Michael but, ...PLEASE.. remember we have other members who may not be quite as lucky.
I applaud Glenn`s restraint, and I am going to keep on knitting for that fundraiser Danny! :p
Caregiver to husband Pete, Dx 4/03 SCC Base of Tongue Stage IV. Chemo /Rad no surgery. Treatment finished 8/03. Doing great!
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#46118 11-11-2005 11:13 AM | Joined: Jun 2005 Posts: 349 Likes: 2 Platinum Member (300+ posts) | | OP Platinum Member (300+ posts)
Joined: Jun 2005 Posts: 349 Likes: 2 | HEY...I owe some on here an appology!!!
I in no way wanted to insinuate that there was no hope...I believe that as long as a heart is beating and lungs are breathing there is ALWAYS HOPE!!!
I quoted what the Dr told me just to give some perspective on his attitude, NOT to imply that I believe in what he said for a minute.
If anything, I am naive in the belief that strength, conviction and healthy attitudes can conquor many ills.
I even challenged the Drs statement in the same paragraph.
I, in no way meant to cause anyone harm, hurt anyone's feelings, or sound self-centered.
This may seem reactionary, but if you could read the email Glenn wrote to me you wouldn't think so.
Michael | 53 | SCC | Right Tonsil | Dx'd: 06-10-05 | STAGE IV, T3N2bM0 | 3 Nodes R Side | MRND & Tonsillectomy 06/29/05 Dr Fee/Stanford | 8 wks Rad/Chemo startd August 15th @ MSKCC, NY | Tx Ended: 09-27-05 | Cancer free at 16+ Yrs | After-Effects of Tx: Thyroid function is 0, ok salivary function, tinnitus, some scars, neck/face asymmetry, gastric reflux. 2017 dysphagia, L Carotid stent / 2019, R Carotid occluded not eligible for stent.2022 dental issues, possible ORN, memory/recall challenges.
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#46119 11-11-2005 02:40 PM | Joined: Nov 2002 Posts: 274 Platinum Member (200+ posts) | | Platinum Member (200+ posts)
Joined: Nov 2002 Posts: 274 | So much for using PM's here. Go ahead Michael, cut and paste away. We have had members face death with more grace and dignity than you have faced survival with. If you paused to think about others here you never would have included that comment in your post. It is not all about Michael. | | |
#46120 11-11-2005 03:03 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Whoa Back up the horses here!
Micheal, It was the doctor that made the sharp comments, you were simply repeating the message. What I posted was to remind all the readers (and you if you needed it) that there is always hope. That doctor might think he is doing good by being so frank, but IMHO he/she is not doing anyone favors by making those comments. Peace, Love and oh ya PEACE! did I say PEACE?
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#46121 11-11-2005 05:09 PM | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,916 Likes: 63 | I think any thread that has over six hundred postings is about ready to be closed. Let's pick up new topics on new threads.
In the last couple of months I have enjoyed about all the postings I can stand where absolutes are included in comments. Where people speak as if their institution is doing what is state of the art compared to others around the country. Where they talk as if they were speaking as if they were a doctor representing a particular institution.
I want all of you in your desire to spread information to think about what you are typing. Not everyone posting here will be around next year. I'd like that reality to sink into those of you who are privileged enough to not be included in that group. Who were lucky enough to be caught at an early stage. Who don't have mets to your lungs or livers. Who have the money to travel to the best institutions around the country. I am not insinuating that all of that has taken place on this thread, I am merely listing some of the things that seem to be getting past people's good judgment in recent posts throughout the board. We all celebrate a success story, a great day, a day without fear, or pain, a good follow up. We all mourn a loss, a bad prognosis, and emotional discomfort. Let's remember the diversity of people that visit this board, regular posters and lurkers, Americans and those from third world countries, where treatments that are commonly discussed here are not available. Let's think about the impact of something seemingly simple
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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