#43435 06-17-2004 02:28 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Thanks for all the kind words and support for me and my family. It means much more than most people think.
I followed up on the phone call to Dr. Kies Brian. I faxed them my reports and the nurse said she would give them to Dr. Kies. I waiting to hear from him.
I am still waiting for my on'gist to get back to me about any clinical trials. If not avaiable I will be trying the convential chemo to try and arrest the progression.
I'm still eating as much as I can and believe me when I say, "See All Of You In Vegas!!"
P.S. Bob,Dianh, Judy, Mandi, Might a heyseed from Wisconsin be allowed a short (5 Minutes) at the podium on Sat night?
Might be taking a family vacation soon. Any suggestions would be welcome! To hot in Vegas now, Mabay Orlando? New Orleans, Denver? Whats a family of four to do?
Your Friend, Danny Boy!!!
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#43436 06-17-2004 02:59 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Danny,
Keep your strength up -- I'm praying that you'll have every opportunity to keep fighting this thing and ultimately win. Your spirit is such an inspiration.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#43437 06-17-2004 03:03 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Danny boy........
I suppose we could manage to allow you five minutes, even a tad more if needed! LOL! Of course you can talk as long as you are comfortable. I am eager to hear what you have to say.
As for a vacation.......how about northern lower peninsula in MI? Charlevoix and Petoskey are lovely now. Just a thought!
Love you
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#43438 06-17-2004 03:59 PM | Joined: Nov 2002 Posts: 541 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Nov 2002 Posts: 541 | Danny Boy, remember you promised to email me your family picture to be taken on the Father's Day? Do dress up because I like watching handsome guys. Keep your spirits up and throw away all your troubles. Enjoy your life. I like this saying: Life is not measured by its length but by its breadth and depth.
Karen.
Karen stage 4B (T3N3M0)tonsil cancer diagnosed in 9/2001.Concurrent chemo-radiation treatment ( XRT x 48 /Cisplatin x 4) ended in 12/01. Have been in remission ever since.
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#43439 06-17-2004 06:05 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Danny,
The only place to truly vacation is in the State of Maine!
Hope wherever you go that you make lasting memories.
Love,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#43440 06-17-2004 06:48 PM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | On your way to Maine you might stop over here in Minnesota! It ain't vegas but it sure can be cool. We'll take you sailing on lake Superior and show you around. Maybe some fishing and golf...I promise not to talk about the Vikings if you promise not to talk about Packers... 
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#43441 06-17-2004 11:17 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Hi Danny,
Take a Southern Carribean cruise - wake up every morning at a different island! Try to go when it's a full moon and watch the moonrise over the ocean at sea - incredible. Get as far away from c as you can get.
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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#43442 06-18-2004 01:13 AM | Joined: Aug 2002 Posts: 76 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2002 Posts: 76 | Hi Danny....Before Dan's surgery we told the kids they could go anywhere.....they picked Cedar Point in Ohio....fun rides that took their minds off of things. Isecond what Judy says too(are you from MI Judy?) My family will be camping in Boyne City over the 4th for a family reunion. It is between Charlevoix and Petoskey. Very Beautiful, especially Charlevoix.
Danny thank you for your email.
My prayers are with you.
Sherrie
Sherrie wife to Dan, Tonsil cancer survivor, Stage IV diagnosed July/2001
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#43443 06-18-2004 01:51 AM | Joined: Apr 2004 Posts: 482 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 482 | Danny: My prayers are with you. As to vacation, consider northern California. The redwoods are beautiful any time of year, but summer is special. There are camping places if you like that and also cabins in the area if that is more to your taste. Absolutely gorgeous area up in the mountains where all is clean and pure.
Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.
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#43444 06-18-2004 02:39 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danny Boy, I'd have to second the Carribean! There is not much more beauty in the world...white sand, blue and green water... Be sure and use the sunscreen if you do go, though  . Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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