#41370 06-12-2007 11:34 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | OP  "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Hello.
Mom had her ct scan done today and her PET scan. We will probably get the results of the pet tomorrow. My sister took her today, she said that they will be using IMRT. I know I've seen it here somewhere, can't focus, can anyone please direct me?
Thanks. hope you all are doing well!
Donna
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | |
#41371 06-12-2007 11:48 AM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | First go here - http://www.oralcancerfoundation.org Bottom of the page click search link, which will take you to here - http://www.oralcancerfoundation.org/search.htm Type in IMRT - the first find will give you an overview, the following 8 pages of finds will fill in any blanks for those with a desire for lots of details
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
| | |
#41372 06-12-2007 03:02 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | Donna
they were able to do both test in one day ? they told me I couldnt do it both in one day cus of the difference in injetions..BOy I hated the pet scan ..I cant sit still that long ..hahahaha
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | |
#41373 06-13-2007 02:29 AM | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | Donna One of the best link I found for IMRT http://www.mayoclinic.org/imrt/howitworks.html Truly an amazing machine. Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#41374 06-13-2007 02:44 AM | Joined: May 2007 Posts: 622 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 | If someone (like I did) really wants to get into this: http://www.medical.siemens.com/weba...productId~e_17251~a_storeId~e_1000 1.htm This is the machine Kevin
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
#41375 06-13-2007 03:04 AM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Thank You Brian and Kevin Like Donna's mother and many others I too will be getting treatment via IMRT in the near future. I have read several pages from the above stated websites pointed out by Brian and Kevin. There is an enormously overwhelming amount of information to read and comprehend. I will have to excuse myself now as "my brain is full"!  PS: Kevin, it is "Truly an amazing machine"!
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
| | |
#41376 06-13-2007 10:30 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | Thanks!!!
still don't have results, but they are in....just waiting for the RO to call with them. Painful just waiting.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | |
#41377 06-13-2007 01:11 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Waiting is definitely the pits! Maybe you could call them? So they know you are anxious.
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#41378 06-14-2007 03:31 AM | Joined: Apr 2007 Posts: 794 "Above & Beyond" Member (500+ posts) | | OP "Above & Beyond" Member (500+ posts)
Joined: Apr 2007 Posts: 794 | RO called this morning! Mom is cancer free everywhere else. I can't tell you how relieved I am. The one thing he did say was that there might be cancer cells in the lymph nodes right beneath her tongue-they showed up med-bright in the scan. He said he was going to overlay the ct and pet scans and radiate from there. At least that is what I think he said. Now I am starting to question myself. I am sooooo happy and feel so blessed. I know there is still a lot ahead of her, but knowing it is contained to that area makes me feel better. I know I've told you all before, I adore my mom, she is my favorite person, best friend. I was so scared. I don't know how I would have managed without all of you. Thanks.
I think now maybe I can re-read what everyone wrote above and maybe comprehend it a little better.
Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
| | |
#41379 06-14-2007 05:37 AM | Joined: Feb 2007 Posts: 168 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Feb 2007 Posts: 168 | Someone correct me if I am wrong, the pet and ct scan are done together. The ct scan is used to show where the uptake is. I noticed that sharlee wrote that they said they couldn't do them both on the same day. I have had all three done in the same machine one right after the other. I would check into this sharlee, one of the things that has caused me prob is not having all the info from the first pet scan to compare with the last two. Unfortunately it doesn't exist but it would have been very helpful. The pet scan shows the uptake but is not the best for showing the exact location, when done with ct it is very accurate at both pre treatment. After treatment it gets a little more difficult. Good luck with all of your mom's treatments Donna.
Lee, age 33, stage 4a, T2N2bM0, Tumor left tonsil (removed), 2 left side nodes removed (poorly differientiatied)total of 3 nodes involved. Treatment IMRT x33/ 2x Cysplatin completed. Good Health and Good Help to you.
Lee
| | |
| Forums23 Topics18,168 Posts196,925 Members13,103 | | Most Online458
Jan 16th, 2020 | | |
|
