#40328 09-13-2006 11:45 AM | Joined: Sep 2006 Posts: 5 Member | OP  Member
Joined: Sep 2006 Posts: 5 | My husband is scheduled to have his PEG put in at 8:00 am next Tuesday and his first radiation treatment at 11:00. Has anyone had this so close together, any input would be appreciated. Thanks Janine
Janine
Husband John, Stage IV tongue, Neck Disection 8/21/06. Radiation and Chemo to start next week.
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#40329 09-13-2006 12:04 PM | Joined: Mar 2003 Posts: 251 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Mar 2003 Posts: 251 | In our experience, having the PEG put in was not a big deal. This doesn't sound unreasonable. My husband had radiation in the morning, PEG put in in the afternoon, radiation again the next morning. I bet your husband will sail through.
Anita
Husband Dx 12/02 Stage 4 Tonsil Cancer T1N2bM0; surgery, radiation, chemo 1/03 - 4/03.
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#40330 09-13-2006 03:14 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Janine, John's pegs [yep, he has had 2] were inserted during other surgeries. The peg was not a big deal- but boy have we been glad he has one!
This schedule may well be harder on you than on him. Caregivers get to sit and wait and wait and wait. Hang in there. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#40331 09-14-2006 03:30 AM | Joined: Jul 2006 Posts: 47 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jul 2006 Posts: 47 | Janine,
The insertion of the PEG takes about 20 minutes. Make sure they don't skimp on the instructions on how to use it, care of the site, and giving you a phone number to call for questions! Also, you should have a consultation with a nutritionist to advise on the type of liquid "formula" to use and the amount of calories and water to be consumed. Good luck! This site has a wealth of information on PEG feeding from experienced PEG-ers and caregivers.
Joyce
CG to Tom dx SCC 5/06; right neck lymph nodes removed, dx right tonsil and tonsillectomy 6/06; rad and chemo started 7/06; treatment COMPLETED 9/06 33x rad; Erbitux (8x); Cisplatin (2);
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#40332 09-24-2006 03:31 PM | Joined: Feb 2004 Posts: 218 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Feb 2004 Posts: 218 | Janine,
I had my PEG put in during my third week of radiation treatment. I had intended to get through without it, but once the effects started to build, I realized I was going to need the PEG. So after my morning rads, I went to another part of the hospital where they inserted the PEG. In retrospect, I should have had the PEG installed right at the beginning of my rad treatments.
I was very sore from the procedure for the first couple of days, particularly when sitting up or lying down, but this passed. I was very glad to have the PEG when I was unable to swallow a sip of water. The removal of the tube a few months later was almost pain-free. One very short burning sensation while it was pulled out.
Amy is right, this is harder on the caregivers. - Sheldon
Dx 1/29/04, SCC, T2N0M0
Tx 2/12/04 Surgery, 4/15/04 66 Gy. radiation (36 sessions)
Dx 3/15/2016, SCC, pT1NX
Tx 3/29/16 Surgery
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#40333 09-25-2006 08:09 AM | Joined: Jul 2005 Posts: 624 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2005 Posts: 624 | One thing -- if your husband has a lot of gastric reflux after getting the PEG (mine did, he lost 3 pounds in two days from upset stomach -- this was three days before start of radiation) -- ask for metaclompramide (Reglan), this moves food through the digestive system more quickly and helps prevent both nausea and reflux. (Sometimes the stomach seems to "rebel" against the PEG for a few days).
My husband ultimately never needed to use his PEG but most people do and are very glad they had it inserted!
Gail
CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!
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#40334 09-25-2006 12:05 PM | Joined: Mar 2002 Posts: 4,912 Likes: 52 OCF Founder Patient Advocate (old timer, 2000 posts) | | OCF Founder Patient Advocate (old timer, 2000 posts)
Joined: Mar 2002 Posts: 4,912 Likes: 52 | Good call Gail. We need to review and possibly re write our peg section of the web site. Ideas like this are missing from it. Any takers to update it?
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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#40335 09-25-2006 02:12 PM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Jun 2006 Posts: 82 | I had the PEG done in the third week of my radiation, 1 day after my second chemo treatment, and a couple of hours before my radiation that day. I actually don't remember my radiation from that day because they wheeled me down after my PEG was inserted and I was still a little groggy.
Make sure that you get good instructions as was said earlier. It isn't hard to understand, just new. It can be a little tricky at first, but once you get the hang of it, there isn't any problem. I was ultimately very glad I had one put in.
I am also very glad that this week I am getting it taken out:)!!!
Sarah
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO
35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
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