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#39865 03-20-2006 03:23 PM
Joined: Nov 2005
Posts: 105
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Gold Member (100+ posts)

Joined: Nov 2005
Posts: 105
Erik,

I can't even get the tip of a finger in my mouth. I've used tongue depressers to wedge it open. I can get up to 6 at times.

As I've said, now that I'm almost done with HBO therapy, I do feel that my jaw is loosening up some. I'm hoping to gain some more range of motion. Once my mouth is healed I'm going to give the old therabite another go around.

John


SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
#39866 03-20-2006 07:38 PM
Joined: Feb 2004
Posts: 261
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Posts: 261
Sorry you're having so much trouble with that, John. We all vary so much in how we heal & recover. I have been very fortunate & try to share my experience so that hopefully someone can use it to get through this shitty hand we've been dealt a little easier.


dx 2/11/04 scca bot T3 IU 2B MO poorly differentiated, margins ok, 3/16 modest, jaw split, over half of tongue removed, free flap from left forearm - finished chemo & rad treatment 5/20/04
#39867 03-21-2006 07:57 AM
Joined: Nov 2005
Posts: 105
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Joined: Nov 2005
Posts: 105
Erik,

I hear you loud and clear. Even though I've accepted that this may be the way I'm going to be, it does not mean that I'm going to give up trying to better myself. I'm really, very happy with the amount of recovery that I've had. Yes, I can't eat what I once did. And yes, I sound a little funny when I speak, but I still get up and go to work everyday! You'll never hear me complain about that.

Regards,

John


SCC base of tongue. Diagnosed as stage IV, Sept. '04. Partial glossectomy, Radical neck dissection left side, 37 Radiation sessions, Chemo x 7 weeks. Finished treatments January '05. Cancer surivor!
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