#37457 06-07-2004 03:06 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) |  "Above & Beyond" Member (300+ posts)
Joined: Apr 2004 Posts: 837 | Eric,
I'm so glad to hear you're feeling better at this point -- and I'm praying that this round clobbers what was left of the cancer. You're right about breathing tubes and sore throats -- I remember waking up in a semi-sedated state with that horrible sensation, wanting to scream and not being able to. Hopefully this will pass soon.
You will stay in my prayers.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#37458 06-07-2004 06:40 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric,
Thank you for the update. It is good to see you back home already. Just remember that this broken world in which we live in holds no promises other than He will be by our side, carrying us when we need it. It is what our beliefs lead us to next that is the real prize! May God continue to bless you and your family. I am praying for a speedy recovery and a wonderful life ahead!
YBIC,
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#37459 06-08-2004 01:19 AM | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Eric, Thank you for that wonderful post, so happy to hear you are feeling positive. I will continue to pray for you and your family and everyone on this board. Our God is an awesome God!!!!!In Christian Love, Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
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#37460 06-08-2004 04:18 AM | Joined: Jul 2003 Posts: 382 Likes: 3 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Jul 2003 Posts: 382 Likes: 3 | Eric-
My prayers too are sent your way! I had my neck dissection 2 years ago. Your neck may be ultra sensitive to touch (lots of the tinglies) after the incision heals. By touching and messaging the area mine became much less sensitive. Physical therapy really helped too with the range of motion returning close to normal and lymph message techniques helped with the swelling. The road is a bit bumpy but there are some great posts on this site with suggestions to help you get through it!! Looking forward to seeing you this fall! - Kris
SCC Stage IV left tonsil neck disection 3/02 radiation finished 6/02 chemo finished 9/02
Stage 2A left breast cancer 3/09, chemo and radiation, finished treatment 2/7/10 -Stage 2 right beast cancer 10/14 chemo and radiation
Every day is still a gift :-)
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#37461 06-08-2004 11:03 AM | Joined: Dec 2003 Posts: 528 "OCF Down Under" "Above & Beyond" Member (500+ posts) | | "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: Dec 2003 Posts: 528 | Dear Eric, Thankyou for your uplifting words. So glad you are back home and feeling comfortable with your situation and your self. I looked like a cast member of the Munsters after my surgery but the stapels were excellent and my wounds healed beautifully.  With love from Helen
RHTonsil SCC Stage IV tx completed May 03
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