#36944 09-25-2003 09:43 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Hi Friends,
Well four IMRT treatments down and 26 to go. I'm surprised how quick the treatment goes. Plus you really don't feel anything yet. I have some tingling in my tongue today but so far no pain. Still inputting 8 to 10 cans of Jevity per day with carnation instant milk powder mixed in. I inject it with the syringe, two cans take about ten minutes. Will I be able to continue that after the side effects kick in? My weight seems to have leveled off. I have put on about 15lbs. since the surgery and hospital stay but I can't seem to gain any more. I am still not eating anything through my mouth, It take foreever and makes my mouth real tired. Sipping on water alot during the day. Take care.
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#36945 09-26-2003 12:29 PM | Joined: Jul 2003 Posts: 235 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jul 2003 Posts: 235 | Dan,
Good to hear from you, your attitude sounds great.
Stay strong and eat as much as you possibly can.
Take care.
D
Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.
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#36946 09-26-2003 12:38 PM | Joined: Sep 2003 Posts: 139 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Sep 2003 Posts: 139 | Dear Dan,
I am so proud of you! Your attitude is wonderful! I know who to call on if I ever :p
get down!
God bless and hang in there!
Judy U
Judy U
Stage I SCC floor of mouth, left radical neck dissection 8/03
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#36947 09-26-2003 12:45 PM | Joined: Sep 2003 Posts: 1,244 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Sep 2003 Posts: 1,244 | Hi Dan well done, we all know the road will have some unexpected twists, but watch out for them and they will not take you by surprise. Live Well,laugh often, love much
cheers Helen
SCC Base of tongue, (TISN0M0) laser surgery, 10/01 and 05/03 no clear margins. Radial free flap graft to tonsil pillar, partial glossectomy, left neck dissection 08/04
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#36948 09-28-2003 06:32 AM | Joined: May 2003 Posts: 41 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: May 2003 Posts: 41 | Hi Dan, I remember sitting in the waiting room
after 4 or 5 treatments and hearing other
patients commenting that they were on treatment
#29 or #30 and how they were glad to be getting
over it. Treatment #33 seemed like a long way off.
Before long I was on my #33, and I was seeing
new folks coming in.
I felt my tongue sticking to my mouth after the
first treatment (no kidding) and it went down
from there.
I was also able the syringe with the PEG which
made things a little easier for me. I could be
done with lunch in 5 minutes! Alot of folks
are unable to do that and have to use the drip
method. I put over a gallon of water in each day
which gives your forearms a good workout from
squeezing a 2 oz syringe that much!
Don't let the crud build up in your mouth/throat.
It will cause a gag reflex which will make you
throw up. I also found if I let my stomach get
empty, I would throw up alot. 2 months after
treatments were over, I could eat enough chicken
noodle soup and soggy cereal by mouth to get
the PEG ripped out. Hang in there!
O-O
Head and neck SCC
TXN2bM0 stage IV
Finished treatment 6/02
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#36949 09-29-2003 04:21 AM | Joined: Jun 2002 Posts: 194 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Jun 2002 Posts: 194 | Hi, I have been following your progress and it is good, keep up your spirits, and keep moving forward!
gnelson, StageIV, cancer free since Nov.9,2000
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