#36720 08-07-2003 12:17 AM | Joined: Apr 2002 Posts: 273 Platinum Member (200+ posts) | OP  Platinum Member (200+ posts)
Joined: Apr 2002 Posts: 273 | Well, for all of you who followed Packer`s progress, last cat scan showed 16mm lesion near shenoid sinus......of course ENT is on vacation and I have tried for 3 days to have an associate look at it.......LOL.......no one wants to bother.......Franks wound has really started to bleed more...........so, unless I can get him in sooner, we have a consult with Dana Farber next Thursday..................so all please include Packer in your prayers.............5 years of this shit, really takes it`s toll.........Dee | | | 
#36721 08-07-2003 01:20 AM | Joined: May 2003 Posts: 58 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2003 Posts: 58 | Dee,
I'm not sure if I'm overstepping here but A friend of mine sent this to me and I think it is particularly comforting. I thought of both of youa nd wanted to share it:
If God brings you to it, He will bring you through it.
Happy moments, praise God.
Difficult moments, seek God.
Quiet moments, worship God.
Painful moments, trust God.
Every moment, thank God.
My prayers are with you both.
Amy
Amy
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#36722 08-07-2003 04:18 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Amy, that is beautiful. Thank you so much for posting it.
Joanna | | |
#36723 08-07-2003 06:30 PM | Joined: Mar 2003 Posts: 189 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2003 Posts: 189 | Dear Dee,
I can feel your exhaustion and relate....by 1/5 at least. We are a year out and things aren't good. You have had so much strength through this, that I worry for your health. Please try to rest (yeah, right, I know). And try to remember, that for WHATEVER reason, we were chosen to follow this path. If nothing more, to find courage from people like you, and hopefully share it with others.
Please email me, if you need someone to talk to.
Love,
Mandi
Husband diagnosed with stage III tonsil and floor of mouth cancer in August 2002. Three rounds of chemo/42 RAD treatments. Upper right lung lobectomy in March 2003. (Benign)
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#36724 08-14-2003 10:58 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: May 2002 Posts: 2,152 | Dear Dee,
I am so sorry to hear that Frank is having problems again. I have followed his progress from the time I found this board a little over a year agao and the two of your are the bravest, most inspiring people on this board. His courage alone has to have helped many get through their own trials. We are all praying for the both of you. Keep us posted on his progress.
Eileen
----------------------
Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#36725 08-15-2003 12:04 AM | Joined: Apr 2002 Posts: 273 Platinum Member (200+ posts) | | OP Platinum Member (200+ posts)
Joined: Apr 2002 Posts: 273 | frank and I both thank everyone for their kind words. We went to dana farber yesterday, and now the word is paliative........tumor is inoperable, looks like chemo, unless they can pinpoint more rad. we wait til sept 10th for pet, cat, etc......unfortunately, it`s the only way to know it`s ca, to deep to biopsy, so we have to check to see if it`s still growing. So, I guess it`s one precious day at a time now.......please keep us in your prayers..........Dee | | |
#36726 08-15-2003 02:14 AM | | Anonymous Unregistered | | Anonymous Unregistered
| Dee,
You and Frank are not far from my thoughts daily. Please know that there is a whole group of people out here that care and wish only the very best for you both.
God bless you.
Dinah | | |
#36727 08-15-2003 07:16 AM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Dee and Frank, count me as one of Dinah's whole group of people. I have just read about all kinds of new chemo drugs, so I think that is a viable option. Never, never abandon hope!
Joanna | | | 
#36728 08-15-2003 10:09 AM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Dee and Frank you both are in my thoughts every day. Each morning the first thing I do is check the website for any updates. I for one am saying a prayer every day for Frank. I will continue to pray for you every day. God Bless you both.
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#36729 08-15-2003 03:04 PM | Joined: Mar 2002 Posts: 188 Gold Member (100+ posts) | | Gold Member (100+ posts)
Joined: Mar 2002 Posts: 188 | Dee and Frank..........My thoughts are with you during this next go-round. When the going gets tough, the tough get going -- you've proved this more than one time. Never give up hope! We're all here rooting for you both. SIncerely, Donna
SCC first time 1989, with a diagnoses of 'cancer in situ' removed lesion, no other treatments.
SCC recurrence 1997 of tongue and floor of the mouth. Stage III /IV Hemmiglossectomy (removed over 60% of tongue/ floor of the mouth), free flap, modified neck, RAD and Chemo(cisplatin, 5fu) simutainously.
Cancer free 6, yes, six, years!
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