#35675 12-12-2007 11:00 AM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | I have Cancer Insurance and received statements from 3 of the Hospitals today. 1 to go.. I was reading the surgery report from the James Cancer Center. They did more to me than I was told. and found somethings I didn't know about or was told about. Take my advice, If any of you get access to these reports, don't read them. I wish I would have just transfered them to a large manilla envelope and waited for the last report to come. Talk about a messed up mind. Time to find someone to talk to. good luck all. These statements are to be sent to Mutual of Omaha.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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#35676 12-12-2007 05:51 PM | Joined: Jun 2007 Posts: 510 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Jun 2007 Posts: 510 | Jim: Sometimes I feel that we've been totally overwhelmed with information, and I just want to scream...'What does it SAY, in LAYMAN'S terms???'
However, it is still my belief that 'in knowledge, there is POWER'...
Today while visiting the Radiation Oncologist, she read a CT report that Buzz had at Baptist on JUNE 7, that states that Buzz has emphasema! ..and it was noted that he should be re-checked in THREE months, which means we're SIX months behind! This fact had not been mentioned at all, up to this point.
Anyway, when we go back to Baptist, I'm insisting on a repeat chest CT as well an the panorama!
It's hard to ask questions and to follow up properly if you don't have all the facts!
Keep you chin up, friend....this IS 2007 (ALMOST 2008) and technology improves DAILY! Whatever your diagnosis, I feel sure that there's SOMETHING to treat it!
Lois & Buzz in NC
CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
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#35677 12-12-2007 06:54 PM | Joined: Jun 2007 Posts: 5,260 Patient Advocate (old timer, 2000 posts) | | OP Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | Lois, these are reports from Aug 3rd when and before I had surgery, to me most of it is jibberish and what i do understand is things I never knew occured, I wish you good luck in gettin another CT and hope like heck that it all comes out good. I can't sleep very well and just got back out of bed. Have a good snuggle with Buzz tonight,,Jim
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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