#35532 09-19-2007 02:52 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Hi, Wayne, I want one too. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#35533 09-19-2007 02:56 PM | Joined: Aug 2007 Posts: 580 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Aug 2007 Posts: 580 | Wayne, I'd love to recieve one of those cards or even an e-mail when you are there.
I admire your strength and attitude.
Mike
Dentist since 1995, 12 year Cancer Survivor, Father, Husband, Thankful to so many who supported me on my journey so far, and more than happy to comfort a friend.
Live, Laugh, Love & Learn.
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#35534 09-19-2007 06:04 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | If you can learn to seperate the fear from the way you approach life in general that's when the battle is won......in my opinion anyways.
I am facing surgery for a new tumor under my tongue. It's going to be tough and no guarantees that it will work, although in my heart I know it will. Even with this facing me, I'm still making my plans for a trip to New Orleans in November for Thanksgiving, New York for Christmas, and a huge trip to Europe with my girls midmay/June timeframe. I refuse to do any differently. I learned that lesson four years ago with my first battle. I just finished looking at motels in New York...........GEEZ, can we say expensive??? But, I want to skate in Central Park, see the tree at Rockerfeller, and see Times Square.........and I'm going to. I want to see the Eiffel Tower, see Spain, Rome, Italy..........I want to see ALL of it. And I will. At least that's how I'm planning it and that's how I'm living it for the moment. Half the excitement is in the planning............so THERE cancer, you can't steal it all!
Live, Love, Laugh.......it's the decor of my home now, I have that saying all over the place and it's how my house stays centered and focused.
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#35535 09-19-2007 06:12 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | And Minnie.. I would LOVE to make the 3 hour drive to say hello to you and your family while you are in NYC !!!! CUZ I know You will be there TOO !!!!
Shar
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35536 09-19-2007 06:17 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | It's a deal Sharlee........and I'm going to hold you to it! Central Park, skating.......you , me, all my kids, all your kids.........it will be grand!
Send me your phone number so we can set this all up, when I make plans I'm relentless and will make them happen!
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#35537 09-19-2007 06:21 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | And Wayne ..I too would love an Xmas Card as I am sure I wIll NEVER see the Great Wall !!! Not due to cancer yet due to having 5 kids and NO Finances to accomadate that one !!! LOL !! But for me living meant going back to dancing ..somthing I love ..I could have taken a position as a cheerleading coach , but I will tell you that FEAR kept me from it ..MY what if I get sick again ..then what Happens..the kids will have no one and then what ... Some times I think the fear is the worst part of all this because I dont know how to change it or make it better !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35538 09-19-2007 06:31 PM | Joined: Feb 2007 Posts: 1,940 "OCF across the pond" Patient Advocate (1000+ posts) | | "OCF across the pond" Patient Advocate (1000+ posts)
Joined: Feb 2007 Posts: 1,940 | When you boil it all down guys,it is no different for anyone really.I am planning to spend a month in Abu Dhabi at christmas with my brother.
The tickets are booked and paid for,but whose to say i will be here at christmas,or even tomorrow .
Life is a lottery and we all have to live one day at a time with or without cancer
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
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#35539 09-22-2007 11:00 PM | Joined: Aug 2003 Posts: 1,627 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | No truer words have been said on here Liz. I'm 46 and who knows if I'll see 47? I could get hit by a bus or could die of a heart attack...........nothing to do with cancer!
Hope our having a great weekend..........mines been fantastic!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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#35540 09-23-2007 06:59 AM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | I agree wth you both there !! Well If anyone knows me and I am sure you all are gettin to LOL.. We all know that I have the WORST LUCK !!!! SO somthing Weird will def happen to me !! LMAO ..LIke I just started Back Dancing ( and asssitng with coaching cheerleading ) and tried to do a round off , which 20 years ago I could SOOO DO !!!, Well Not so much anymore ... LOL and Now Jumping on the trampoline .I haven't tried that due to fear..I am one of those Jump once FLY OFF !!!! hahahaa
The truth is ..we don't know what tommorrow brings and we have to enjoy as much as we can today, while after having this disease I def have more fear in my life then ever ( over everything) I am starting to build more courage and def trying to enjoy everyday , when I am not laid flat out after my round off attempts LOL , it was quite comical I might tell you though !!!
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35541 09-23-2007 12:46 PM | Joined: May 2006 Posts: 69 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: May 2006 Posts: 69 |
the world brought me to my knees...
Update: Feb 10/08: Mom passed away on Jan 31,08 - infection (unknown) in her lungs with her weakened immune system resulted in cardiac arrest - T2NO SCC of tongue surgery 6/30/06, SCC left neck and lungs detected Sept 07, 7 weeks rad/3 rounds chemo had no effect.
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