Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
#35318 06-30-2007 02:01 PM
Joined: Jun 2007
Posts: 42
BarbT Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Jun 2007
Posts: 42
I'm living with a man who just had the confirmation here recently that he has cancer on his tounge and mouth and is needing surgery soon.. i understand hes in a lot of pain and it seems he doesnt want bothered.. but what i dont understand is how he can be so mean and push away the one that he claims to love... i dont know what to do for him... i know this is his cancer but he doesnt understand that it affects me too.. he has no idea how it hurts me to see him in such pain....i find myself crying at the drop of a hat here lately.. it doesnt matter where...home ..work... it just happens...WHAT IS A PERSON TO DO???...


Barb
#35319 06-30-2007 03:02 PM
Joined: Nov 2006
Posts: 2,671
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2006
Posts: 2,671
Dear Barb - You've already done something really good by coming to this site. One of the worst times for a cancer survivor and for the person close to him is when you first get the diagnosis and the time when you can start fighting it. There is a wealth of information on this site and lots of helpful, caring people that will help. You can start by using the "search" function on the main page or at the top of this one. Do you know the stage of cancer and type of surgery? It is also important to be at a cancer center that has a team approach to the treatment. When my son was diagnosed with his tongue cancer, he was in a tremendous amount of pain, too - and this as well as the shock of the diagnosis can certainly affect a person's disposition. Did the doctor prescribe any medication for his pain? You need to think about yourself, too. Take deep breaths, and know that you can get thru this - a day at a time and sometimes more like 5 minutes at a time. If the anxious moments get really bad, perhaps your doctor can give you something. The more you can find out about what his treatment plan is, and what you both can do to fight the cancer beast, the better you both will feel. Being a caregiver is certainly no pic-nic. Sometimes it is really hard to know what to say or do for the person that means so much to you - but hang in there. Things will get better!


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#35320 06-30-2007 03:19 PM
Joined: Mar 2007
Posts: 525
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
Welcome Barb

You have come to the best place possible for help and understanding.

Everyone here will help you and your mate get through this. They are all caring, compassionate people who possess first hand knowledge.

Please keep posting here and keep asking any and all questions and we will help you.

I have just gone through this almost identical procedure. I was scared and frightened. I too, was in a mindset that I would not get treated and that this was the end.

This was only because of my lack of knowledge. They removed almost half my tongue and I was talking and eating (soft foods) in 2 days. My surgery was 45 days ago and I can talk fine and eat anything. I had false teeth prior and I will need new ones after radiation treatment.

If I had teeth I would be almost normal and could eat anything.

It is a very scary situation when they tell you they want to remove part of your tongue.

The people on this forum gave me the courage and knowledge to fight and win against what we sometimes call "The Beast".

I am still healing but I am doing fine. I am working (more than I


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#35321 07-02-2007 01:38 AM
Joined: Aug 2006
Posts: 294
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Aug 2006
Posts: 294
This does not sound like a totally unique delimma Barb. If you surf around this board you will find some similar recent posts and they all seem to be from female mates. I'm beginning to think that this type of situation is not all that uncommon, especially during the early stages of the initial shock that comes with diagnosis.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
#35322 07-02-2007 04:20 AM
Joined: Mar 2007
Posts: 525
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Mar 2007
Posts: 525
Hello Barb

I know this is a very stressful time for you. I hope these messages have helped you.

Please keep posting here.

Some people prefer to respond to "private" issues through E-mail and Private messaging and I noticed that neither of these "OPTIONAL features are "turned on".

If you prefer to enable them I put the instructions below. Remember that this is not a necessity, only an option.

I am Praying for you and wishing the best.

Sincerely, Petey

ABOUT PRIVATE MESSAGES (PM) AND E-MAIL SET-UP

TO READ AN INCOMMING PM:

At the top of the page click on "my profile". Under where is reads "Incoming Private Messages" there is the word "subject". Click the message title under subject to open the message.

TO SEND A PM:

At the top center of "any post" there is an icon with two people shaking hands next to an envelope. Click it to open. Type in "Subject", type in "Message" then click "send new private message".

FOR YOUR E-MAIL AND PRIVATE MESSAGING SET UP:

Click "my profile" at the top of the page.
When the page opens, click on "Edit profile" at the top left.

When that page opens scroll down to "E-mail Address". Type in your E-mail address and click yes & yes to the two fields under it.

Scroll down further to


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
#35323 07-02-2007 04:21 AM
Joined: Apr 2007
Posts: 794
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2007
Posts: 794
Good Morning Barb!
I think everyone here has felt something of what you wrote about. I too was crying at the drop of a hat....anytime, anywhere. I followed the advice of some wise friends here at the forum and went and spoke with my doctor about an antidepressant...I han't realized how much everything was really affecting me till recently. I started the meds and felt a lot better within a week or so.
My whole family breaks down at times, my mom, who is the best person I have ever met in my life turns into a bear at times and it's very upsetting. After a few gnarly growls she herself gets upset and ends up in tears. I wish the rest of my family could understand that she is venting and in pain. At times-she is awful. I dont' know if the meds helped me or it's my faith helping me keep everything together. Mom won't go on any meds, she would be disturbed if she knew I went on them. It may be something to look into. Also, my parents, who normally get along better than any two people I know, have moments of ugliness. It happens. I know that saying is probably true that when something bad happens to us we usually take it out on the ones we love most. I guess because of the trust we feel. Good luck.


Donna
CG to Mom, dx 4/25/07 with tongue cancer,T3N0,tx began 7/6/07, 31 tx's of IMRT, 8 cycles of Erbitux. Brachytherapy, surgery, left neck dissection and temp trach placed all on 9/17/07, trach removed 10/17/07. ORN of jaw, late effect of radiation symptoms. **lost my beautiful mother on 5/5/11.
#35324 07-02-2007 05:01 AM
Joined: Jan 2004
Posts: 1,116
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2004
Posts: 1,116
Good Morning Barb, I am sorry your husband has been dealt this and for you too. Can he get pain medication from his doctor, sounds like he needs something to get him through until his surgery. And can you get something for the anxiety (which is totally understood) from your doctor? I am thinking of you and hoping things get better, you can pm or email me if you want. Carol


Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
#35325 07-02-2007 05:33 AM
Joined: Jun 2007
Posts: 6
Member
Offline
Member

Joined: Jun 2007
Posts: 6
Hi Barb- I know how you feel. Just last night I had a crying fit and finally had to get some things off my chest that were bothering me. I felt bad about letting my significant other hear all I had to say, but sometimes you can't keep stuff pent up. My man doesn"t like to talk about it. Today he starts his 3rd week of radiation. He is gone for a week at time because it's a 200 mile round trip. Keep yourself busy. I have painted everything I can from doors to the cattle pen. I wish I could be with him everyday, but we have cattle, pets, and a huge yard to care for. This is a great site. I read all I can for hours. Hang in there.

#35326 07-02-2007 06:48 AM
Joined: Jun 2007
Posts: 42
BarbT Offline OP
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Jun 2007
Posts: 42
I want to thank everyone here for the advice... i did get him to go to the hospital yesterday (July 1) he was in such pain and it was to the point that he couldnt even swallow his own spit..he is swollen really bad, the drs say he has an absess of some kind in his mouth and is full of infection in his tonuge and face and neck and nodes... its not good.. was causing him alot of pain in his ear and tonuge and face and neck.. i guess infection will do that..they have him on fluids because he was dehydrated and antibiotics and pain meds.. as much as i would like to be at the hospital i cant be there all the time.. its 2 hours away.. and i have a 14 year old at home and i have to work also.. but i will make it back to the hospital as soon as i can..i talked to him today he sounded a little better but not much.. still having trouble talking...as for myself i am on welbutrin and i do have a script for xanax to take as needed.. i have taken them here lately.. it makes me sleepy but it does seem to calm me down somewhat....well i must go for now but like i said THANKS AGAIN FOR ALL THE ADVICE.. i really needed someone to talk to..


Barb
#35327 07-02-2007 03:50 PM
Joined: Jun 2007
Posts: 510
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Jun 2007
Posts: 510
Barb: I am a two-time cancer survivor, and NOW I'm on the other side of the fence, as a caregiver. Although husband has barely been diagnosed a month, I can already tell you that it is much easier to be the cancer victim! It's so hard to know what to say, much less what to do in this situation. Just know that there are others who are going through this, and we MUST lean on each other as much as possible. It has been most helpful to me to be able to 'vent' and ask many questions on this forum, as we are all in the same situation, in one way or another.
So, welcome, friend! Keep us updated on the progress of your loved one and we will definitely keep you both in our prayers! Lois and Buzz in NC


CG to 77 y/o hubby;SCC Alveolar Ridge; Wake Forest Baptist Hosp surgery: 07/19/07; bi mod radical resection/jaw replacement;
T2 N2-B M0 Stage IV-A
28 IMRT +
6 Paclitaxel/Carboplatin
Getting stronger every day!
Page 1 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5