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#35293 06-09-2007 05:13 PM
Joined: Nov 2006
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Sharlee - I am so glad that things were a little better for you, today. And how great that your friend was there to support you! You really do need to take care of yourself and you cannot do everything or worry about everything at once. I was married for 20 years to an abusive alcoholic and it took me way too long to realize it. But if you think alcohol could be the problem (there are ways like checklists to be able to decide) - then, as Petey says, you should get yourself to an Al-Anon meeting. Living with an alcoholic is a crazy-maker. After attending my first Al-Anon meeting, I left there feeling like a tremendous weight had been lifted off my shoulders - a weight I hadn't even realized was there. You have gotten such good advice and thoughts above. Just remember we are all thinking about you and hoping everything goes well. If you need to talk more about Al-Anon or anything else, please PM me.


Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)



#35294 06-10-2007 06:07 PM
Joined: Feb 2005
Posts: 2,019
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Sharlee,

My ex husband was (and is) an alcoholic and I went through some tough times with my current husband when I was fighting two kinds of cancer at once because the cancer thing just freaked him out so I have been sort of near the shoes you are in though not exactly in them.

And although,like Minnie, I'd like to whop your husband's ass right now for what he said to you, I think the most sane advice I can give you is to get counseling help for yourself RIGHT NOW. As others have suggested, ask to speak to the social worker at your hospital, they will know of what's available. I'm also a veteran of al-anon and I agree with others who have suggested them although quite honestly I don't think al-anon will be enough to help you through the stress of fighting cancer right now. Still, you need all the support you can get and it can't hurt to check them out.

Honestly, it's hard for me to tell from what you've written if your husband really is an alcoholic or is just abusing alcohol because of the stress of the cancer stuff you are going through. If there were cracks in your marriage before, this disease can turn them into fault lines. That's what happened for me--and the cracks were ones I didn't even know were there before I got cancer. Fortunately, my husband and I went to couples counseling and our marriage seems to be back on track. But believe me, it was touch and go for a while and it happened during a year of cnacer treatment hell for me.

So my other advice is, along with getting help for yourself, if there's any way you can, see about getting some kind of marriage or couples counseling. Actually, maybe you need a family counselor because it sounds like your teenage daughter may need to see how important it is to support you too right now.

Bottom line is, if you do have more cancer (and don't assume you do just yet) and need radiation, even if there are other issues, they are just going to have to wait at least a little while. And people need to understand that. If your family, especially your husband, can not understand that, maybe you need to move somewhere (in with sibling or a friend?) where you will be cared for or at least not unduly stressed when you are going through treatment--with the promise that you will come back to try to work out your family issues as soon as you have the energy.

Finally do remember that we care about you here and will try to offer whatever cyber-support we can.

Oh, and thanks for putting more line breaks in your writing. It really helps someone like me with old eyes in terms of being able to follow what you're saying....

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#35295 06-11-2007 08:07 AM
Joined: May 2007
Posts: 632
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Sharlee---I agree with Nelie totally--you need every ounce of help you can get for yourself right now! I cannot imagine how you can have fought this disease AND run a house and 5 kids--that's one Hell of an achievement smile

I also agree with the comment about writing being therapeutic--I went out and bought myself a pad, file and some pretty-coloured gel pens, and I write down each day what I'm feeling.

Something I've learned from this site is how caring everyone is and also that the 'one thing at a time' philosophy is the only way to get through--and that's before I even start treatments!

Am thinking of you Sahrlee and come and vent anytime!
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#35296 06-11-2007 10:07 AM
Joined: Feb 2005
Posts: 2,019
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Sharlee,

I was thinking about you earlier today and just wanted to add one piece of advice which is do not try to argue about anything with your husband while he is drinking. Whether or not he's an alcoholic or just abusing alcohol because he's stressed, alcohol doesn't make for positive conversations during tense times.

When I was splitting up with my ex (over a decade ago now), a counselor I saw used to tell me there are only five words you should use in conversation with an active alcoholic. They are:

"yeah." "no." "really?" "oh." and "whatever".

I still find this list of words a good list to have when I'm dealing with someone who's really ranting about something. Try them out next time your husband acts like a jerk--wait to have the meaningful conversation about how you're feelibg until he's in a place where he might be able to hear what you're saying!

Nelie


SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
#35297 06-11-2007 09:32 PM
Joined: Feb 2007
Posts: 1,940
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Rob and i always had a fairly confrontational relationship,and Rob always used to save his best barbs for when he had a few drinks,it was almost like he needed the alcohol to give him the neccessary degree of venom to hurt the most.
From the day he was diagnosed with cancer,the confrontations ceased and a much more subtle method of verbal abuse replaced it.I recognised this shift quite early on, and decided there and then that i wouldnt under any circumstances give him the satisfaction of
a) seeing how hurt and upset i was,
b) Not retaliating.
I hoped that by doing this he would give it up as a bad job,and so an uneasy truce reigned, and i tried to put all my efforts into showing him i loved him and would do anything he needed to help him fight his way back to full health.I used all the words that Nelie quoted but mostly i kept my silence and just removed myself from the situation.This worked because i refused to fuel the fire, and the flames quickly died down. So Shar my advice for what it is worth is dont flare up when he doesnt behave in the way you want him too,dont give him any room to instigate a fight,and he will soon get bored when he doesnt get a reaction.It will also make him look at you more closely and try and work out what is going on.


Liz in the UK

Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007
Recurrence June/07 died July 29th/07.

Never take your eye off the ball, it may just smack you in the mouth.
#35298 06-12-2007 04:08 PM
Joined: Dec 2006
Posts: 36
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Sharlee,

You have been so supportive in all your posts to me about my mom. As with many of those that care enough to support total strangers on this site, you have shown a strong commitment to both resilience and sensitivity. I was deeply saddened by your news.

Perhaps the ENT doc is just being overly protective in his aggressive preliminary diagnosis. I pray he is wrong.

Your husband sounds like a shallow, angry boy who is in denial. Don

#35299 06-13-2007 01:10 AM
Joined: Mar 2007
Posts: 46
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Sharlee,

My thoughts and prayers are with you today.


youngin
#35300 06-13-2007 07:24 AM
Joined: May 2007
Posts: 61
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Posts: 61
Shar-
I know you are waiting for your PET results from yesterday and I am thinking of you. Let us know what you find out. We'll be praying for good results.


SCC-tongueT3N0M0- IMRT 35times-1/07-3/07; along with one cycle of Cisplat & one cycle of Carboplat; weekly erbitux.finished all tx.3/07-supposedly gone. Recurrence 6/07. Age 31-non-smoker/social drinker. Devastated it's back.
#35301 06-13-2007 08:23 AM
Joined: May 2007
Posts: 632
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Oh boy, are we SO all in this together!
Although last week I was given diagnosis of 'lung, spread to nodes, liver and jawbone', it's still the jaw problems that are seriously 'presenting'.
Shar---I brought twins up on my own, they're 33 now (next week actually) and I just did 'the best I could'
Just concentrate on you, remeber what a good job you've done so far and don't allow ANYONE to put you down.
You've dealt with so much so far, and will continue to do so--however you decide to do it!
Try Yoga breathing--it's the only thing which has got me through tests/needles/knives/tunnels so far---and will hopefully get me thro my 2 docs appointments for a possible 'plan' tomorrow.
We're here for you Shar
Brenda x


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#35302 06-13-2007 07:51 PM
Joined: Jan 2007
Posts: 735
sharlee Offline OP
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Talked to my new Dr today.. He doset have results yet he said , he also stated he dosent like to give results over phone..SO I will know nothing until Fri,, I hate the wait and of course I feel the thing on my face is growing daily ( i know it really isnt ) but def more tender..Thanks to all of you who are helping me through this !! I couldnt do this with out you . Things here are OK I guess .. Been so busy this week with Drs and scans ,LOL No time for anything else ! ANd joe has worked both jobs so i havent seen him much , we did however go to school today for Alex's (6) field day ..so that was nice . well gonna try to sleep !! Talk to you all soon !


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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