Previous Thread
Next Thread
Print Thread
Page 1 of 2 1 2
#35181 05-21-2007 04:23 PM
Joined: Jan 2007
Posts: 735
sharlee Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
I went to my Gp on fri and he decided that the lymph node near my jaw had to be removed. SO they called my surgeon and I went there Fri afternoon...Now they arent sure if it is a lymph node or somthing in my Jaw.UGHHHHHHHHHHHHHHHHHHh It is about the size of one of those large marbles. so I have to have a Ct scan. but it was like 5 pm when I finished with the Dr and they never called today to give me the appointment and when I called them they hadnt done it yet . CAN I JUST GO TO SLEEP NOW AND YOU WAKE ME WHEN IT IS OVER ? I really think I am starting to lose my mind. My good friend ( or so called) had a baby thurs came home fri and on sat at like 2-3 am ended up back in hospital baby stopped breathing. they called me at 430n am but I never heard phone as I had increase my meds acooring to Dr and I hadnt slept in 2 days so i was OUT . Then when I talked to them ( still not knowing ) they told me and told me I couldnt come over to hospital they would call me ..NEVER DID >I cant tell you all I do an have done for them. the baby was moved to albany med ( before they were less then 5 min from my houes)now an hr away.she calls me sun during my 8 year olds bday party..an tell me how her couisn "DROVE ALL THE WAY DOWN " when she found out ( to the one near my house) and NOthing kept her away ! I was P******* and HURT and Informe her that her husband Blatently told me not once but twice not to come there ( as I fin out now alot of others there) The same husband who went home and got himself 5-6 outfits and her nothing .she was hinting for me to run her kids between the adults that were taking them ..uhmmmm hello they are adults with vehicles and all close to an hour away from me . they are like 20 min from each other ! And then wanted me to leave my daughters party to come down ...The baby is fine I guess an stable and they were leaving the hospital to eat . I guess I feel so taken advantage off ..she even knew what was going on with me health wise and that mentally i was going through alot ..either way lymph node or jaw...surgery is in my futire. And when I think about it ...she lives 2 minutes from me ..when I had my BIG surgery she never came to hospital and didnt even come to see me till i was home for over a week. soooooo with all of this going on ..not doing so well ...very teary eyed and just wanting to figure away to get through it all ..and not nessacarilly have it all about me ..unless that is ok ..just soooooo overwhelemed right now.


shar


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#35182 05-21-2007 04:40 PM
Joined: Jul 2006
Posts: 446
"OCF Canuck"
Platinum Member (300+ posts)
Offline
"OCF Canuck"
Platinum Member (300+ posts)

Joined: Jul 2006
Posts: 446
Some people can't deal with cancer...they just can't. they put you, and it on ignore, and come back to the relationship when the disease is all gone.

I had several familily members completely sever contact with my during my illness. It hurt enormously, enough that now I want nothing to do with them again. I understand it was a lack of their ability to cope, but it doesn't make it any easier to deal with.

Your emotions are high, so are theirs. Maybe you just need to step away from them for a while. Look after you, and worry about less important stuff later. Right now, everything but your health is "small stuff"

Put it all in the "small stuff" bin, and deal with it when you're ready. Until then...get through the day, then get through tomorrow. Everything else will fall in line
Wayne


SCC left mandible TIVN0M0 40% of jaw removed, rebuilt using fibula, titanium and tissue from forearm.June 06. 30 IMRT Aug.-Oct. 06
#35183 05-21-2007 04:43 PM
Joined: Apr 2007
Posts: 18
Member
Offline
Member

Joined: Apr 2007
Posts: 18
Sharlee,

Best of luck with the CT scan. Don't let this person get you down. I have a friend who also seems to "forget" empathy for others when they are in need...she called to complain last week. Her husband had been sick for a week in bed and was on 2 antibiotics, she had a sore back so her 9 month old was being fussy and her husband had not bothered to do anything for her first Mother's Day (even when he was well enough to return to work later in the week). Do you really want, or need to say, I can top you on that???

One thing I'm learning with my husband's cancer, a feisty daughter in her terrible twos and six month old who doesn't need to sleep is that some people are there for you, while others will always need something from you even when it's pretty obvious you've got more than enough on your plate as is. You deserve a pat on the back for not venting it out on her and doing it on this forum. You are a class act and it shows.

Take care,

Elaine


Caregiver to husband 43, non-smoker, social drinker diagnosed Mar07 SCC tongue lymph node involvement. Started treatment May 2/07 35 radiation tx with 7 Cisplatin boosters completed June 22/07. Clear PETScan Oct 07
#35184 05-22-2007 01:38 AM
Joined: Apr 2007
Posts: 131
Gold Member (100+ posts)
Offline
Gold Member (100+ posts)

Joined: Apr 2007
Posts: 131
Sharlee, I concentrate on this forum. It keeps me going. I am constantly reading the many posts in this forum. Any questions, I have I vent here. We were told to do that by several members. Put more time into this forum and forget the so called friends. You are NUMBER 1 and you have concerns (not to mention trying to cope with this devastating disease) Chin up, listen to your doctors and keep reading the posts in this forum. Strangely they become you NEW found friends in time. They are the ones here for you. Carol....


Carol CG to Husband age 60 Stage IV SCC right tonsil T4AN2B tx rad x 35 chemo x 2 Currently after treatment no sign of cancer in throat. (all clear to date)
#35185 05-22-2007 02:09 AM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Sharlee,

Take a couple of deep breaths and calm down. You are not doing anything good by getting yourself worked up. We all want this nightmare to go away but it's better to just confront it head on and make the best of it.

As far as your "friends", just remember you are highly emotional right now so everything can and will be blown way out of proportion.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#35186 05-22-2007 07:20 AM
Joined: May 2007
Posts: 632
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: May 2007
Posts: 632
Oh Sharlee--you poor thing! With all you've gone through, you're BOUND to feel down--but I've read your posts to many members and you're a kind, funny caring person who must have helped a lot of others, so just have a good sob for now, take the meds and concentrate on yourself. Being strong all the time is HARD!--I brought up twins single-handedly, worked full-time, was carer to my mum thro her cancer, then my dad with Pagett's disease--and now my future aint looking too good, either! You'll bounce back, because it's obvious from your posts you always have, but my theory is you're allowed to feel pretty lousy and drop the facade at times, have a bawl and dust yourself off when you're ready--ignoring needy others if need be, at this point in time!
Brenda


Brenda in UK--Diagnosis 30/5/07--undifferentiated carcinoma in right jawbone and muscles. Stage 4
6/7/07--new diagnosis primary is in lung. Finished 4cycles of palliative carboplatin/gemcitabine
therapy September 07
Now dying to live!
#35187 05-22-2007 09:57 AM
Joined: Apr 2006
Posts: 794
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 794
I have decided that nobody knows the feelings and needs of a cancer patient better than one who has experienced this terrible disease. Others try, but there is no way that they can understand how it weighs on our minds. You have to accept that fact, and appreciate the efforts people make to be sensitive. Ditto for the toughtless, selfish friend. She simply can't imagine your problems, so she can't put herself into your shoes. She feels that her particular challenges are comparable, and she has no idea how far off she is. Don't lose a friendship over it,and don't stop communicating with your non-cancer friends, but do cultivate a few who are willing to learn and to understand, and stay in touch here with those wyo REALLY understand. You need both!


Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
#35188 05-22-2007 03:37 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Sharlee, my [very wise] Dad told me early in life that I would need to learn to "pick my battles wisely and pick my friends even more wisely" You know what your battle is right now. Amy in the Ozarks


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#35189 05-22-2007 03:47 PM
Joined: Jan 2007
Posts: 735
sharlee Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2007
Posts: 735
Thank you all so much ..this is soooooo hard , yet you all alreay know that ..I do not want another surgery ,,yet who does and I have to do what I have to do. I hate that my friend had to go through this..even more that she wants to chose when my visits would be convinent, of course now that i suggested that being the baby was fine the husband sleep at home an save them $150 then go back in the am ..I am insensitive and she wont speak to me . I have found out from her family baby is fine and they were coming home today. I know that now has to be about me ..I guess that is my problem I dont know how to make it aboout me ! And you are all right ,,we find out who are true friends are and even then they dont have a clue..some just try harder then others to understand. I start counseling tomorrow ..my gp thought it best...I have been pretty goo through most of this ..But Now I am starting to struggle.so I guess it is time ...Thanks so much to all of you for being there u are really are a big help and a main reason I have gotten through this so far!


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
#35190 05-23-2007 07:24 AM
Joined: Mar 2007
Posts: 46
Contributing Member (25+ posts)
Offline
Contributing Member (25+ posts)

Joined: Mar 2007
Posts: 46
I hope you're feeling better about your friend, when it rains, it pours. I'm praying for you that your scan comes back good with no need for surgery. Based on what I've seen of you on this forum, I'm willing to bet my left lug nut that you are a great friend. You have an awesome personality, I wish there were people like you around.


youngin
Page 1 of 2 1 2

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
amndcllns01, Jina, VintageMel, rahul320, Sean916
13,104 Registered Users
Forum Statistics
Forums23
Topics18,168
Posts196,927
Members13,104
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5