#35117 05-07-2007 02:52 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Jan 2007 Posts: 735 | ALL GREAT IDEAS !!! I love being creative and I am always looking for new things !! Well as you can see I am feeling a little better!!! I do weddings and stuff ..but this is somthing new !! and can be very inspring ! I like BOTH IDEAS !
Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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#35118 05-07-2007 03:42 PM | Joined: Mar 2007 Posts: 525 "Above & Beyond" Member (300+ posts) | | "Above & Beyond" Member (300+ posts)
Joined: Mar 2007 Posts: 525 | Hey All You Mr. Potatoe Heads! Wouldn't it be great if we could all get on the Martha Stewart Show and discuss oral cancer as we "Dolled Up" our maskies? 
DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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#35119 05-07-2007 10:40 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Hm-m-m-m now what would Martha Stewart do with the mask? And David - no need to get into my son's meds. You and everyone else at OCF are my "meds". 
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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#35120 05-08-2007 05:36 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | AM,
Then I think you need to cut back on your hours here.
Just kidding, you know!
Petey,
You need to start your TX soon as your starting to go a little batty on us.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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#35121 05-10-2007 07:38 AM | Joined: Apr 2007 Posts: 42 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Apr 2007 Posts: 42 | I want to paint mine up to look like Spongebob and then go on Martha Stewart. Wouldn't that be a hoot? LOL
Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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#35122 05-15-2007 04:25 PM | Joined: May 2007 Posts: 17 Member | | Member
Joined: May 2007 Posts: 17 | Hi MKlein,
I admire you for trying to make friends with your mask. I'm struggling to be positive about mine. I'm getting used to it, so I must be having some success.
The mask is worn daily during each rad treatment. You lay on a hard friggin board, and they bolt your mask down to the table so you literally cannot move. My radiation treatments last roughly 20 minutes from the time I walk into the room to the time I leave the cancer center.
Because my back hates laying on flat hard surfaces, the technicians are nice and give me a towel folded in 4's to place at my lower back, and they give me a knee cushion plus a pillow so it lifts my legs and takes some of the curve out of my back (I have a big butt). That makes it far more comfortable.
The technicians assure me they are watching me on a camera the whole time and if I feel any distress, all I have to do is wave my arms and they'll be right in to help. I have concerns as I get further into this of gagging or coughing or feeling nauseous.
As with everything, the deeper I get into this journey, the more I see my previous fears as no big deal. I'm getting that way about the mask. After going thru MRIs and PET scans, a simple mammogram is nuthin'. And I suspect by the time I get to the end of my treatments, my fears about wearing the mask will make me laugh.
One of the techs suggested I think of it as wearing armor. It's there to protect you.
And MKlein... I'm waving at you from the other end of the Columbia Gorge, in The Dalles. I see you are from Sandy -- it's a beautiful little community.
Nasopharyngeal carcinoma, epithelioma-like carcinoma. (T2ANOMO IIa). Completed 35 rad treatments June 19, 2007.
"When god closes one door he opens another; but sometimes it's hell in the hallway."
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