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Joined: Apr 2007
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MKlein Offline OP
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The mask is on for only a few minutes during the radiation treatments, correct? This mask isn't on for weeks I hope.

Thanks


Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
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Correct.

And there are NO stupid questions here!

All the best,
Leslie


Leslie

April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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MKlein Offline OP
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Thank you, Leslie B
I don't think I would have been able to handle wearing that mask long periods of time. Now I might be able to get some sleep. = )


Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
Joined: Mar 2007
Posts: 525
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Hello MK
I sent you a PM (private message). You did not read it. Look at the top left of the page. Where it reads, Hello MKlein [log out] there will be small blue writing saying you have mail or something like that. Click it and read & respond please. Petey
PS. You can also open it by going to "my profile". Or read in the fag "private messages". ( I'll learn ya!)
PS: THE ONLY STUPID QUESTION IS THE ONE YOU DO NOT ASK! :rolleyes:


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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MKlein Offline OP
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PeteyB,

I am so sorry...I thought that was an old PM. Now I know better. (Always check before I delete)

I am so sorry about that - can you re-send?

MK


Oral Squamous Carcinoma in the right tonsil, Surgery April 5th 2007, Non Smoker, Stage 3. Started IMRT treatment May 30th.
Joined: Mar 2007
Posts: 525
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Just for that, you now must wear your mask 24/7 eek I just resent it. It tested my computor skills. :rolleyes:


DX 3-21-07 L tongue,SCC Stage IV (T3N2MO) TX Slash/Burn/Poison Method.
***Rapid Aggressive Recurrence 8-4-07 with same DX/TX. Life does not cease to be funny when people die any more than it ceases to be serious when people laugh. Never Give Up! ****UPDATE**** Our dear friend Petey passed away, RIP 9-2-07
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You only wear the mask while on the treatment table for the few minutes of each session. In my case the mask stayed in the treatment room where it hung on the wall with about 20 others as I recall. Each had the patient's name on it.

You will get to keep it as a trophy following treatment if you like. Might as well take it as somebody paid a nice price for the contraption!

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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Ya know what I think....Of course not ..so I will tell you , I didnt have Rad , but the thought of that mask scared the hell outta me . But being you get to keep them . I think it would be neat if we could do some kind of art with it, to show the courage and strength of the people who wore them and have it displayed to promote cancer awareness and suviorship. I dunno maybe to some this is not a good idea, just a thought that I thought I would share !

Sharlee


Sharlee
35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
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I brought mine home with me but after looking at it a few times I decided to toss it. It sorta gave me the creeps after awhile.

Bill D.


Dx 4/27/06, SCC, BOT, Stage III/IV, Tx 5/25/06 through 7/12/06 - 33 IMRT and 4 chemo, radical right side neck dissection 9/20/06.
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I took mine with me as a "show and tell" when I made my presentation to the Florida House. You should have seen the stares I got; the questions I got. Believe me when I told them how we are BOLTED DOWN to the rad table soooooo tight it leaves impressions in our face, it made the point that I wanted. I remember looking up at one point and catching the eye of a female House Representative and I will never forget the look of horror on her face.

Anyway may mask and I had quite a day. We left the house at 5am and returned at 10pm. On the way up to Tallahassee I just carried him in the open and I was stopped by about every 3rd person. "What's that?" ... "What do you do with that?" I tried putting him in the overhead bin on the plane and he wouldn't fit. They also didn't allow me to keep him with me at my seat so he got to ride special in the first class coat closet. On the plane ride back I bagged him up. I was just to tired to explain anymore. He has a special place in a spare bedroom and I can tell everytime I walk by that he's anxious to travel again.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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