#35060 04-22-2007 10:34 AM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | I am trying to be strong, but i'm so scared and depressed I can hardly focus.
I find myself sleeping or walking back and forth in my house. I barely get my house cleaned at all. I'm not a slop by nature, but I feel like i'm turning into one.
It's beautiful outside, but It's an effort to sit in one spot for to long.
Someone please talk me outta this panic attack
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
| | |
#35061 04-22-2007 11:38 AM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Hi Ann Marie - Don't worry about taking care of your house, it will still be there after you take care of yourself! Unless of course cleaning gives you some exercise that relieves those anxious feelings. I use to vacuum in the wee hours of the morning when I woke up with that horrible anxious feeling in the pit of my stomach. Somebody on this site said that " it's harder for depression to hit a moving target" and it's true. I would also do toe touches and stay in the bent position - it made me feel like I was getting oxygen to my brain and it helped a little. Hot baths - deep breathing - holding a hot (not too hot) cup of tea close to my chest. If it's still beautiful outside it helps to walk around taking deep breaths. I'll bet if you called your doctor, he could give you something to relieve those anxious feelings. How about chocolate? ( I went thru a lot of those really good Ghiradelli carmel filled chocolate squares) Just hang in there Ann Marie - you can get thru this! I'm thinking about you and sending positive vibes your way.
Annette
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#35062 04-22-2007 01:08 PM | Joined: Jul 2006 Posts: 68 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jul 2006 Posts: 68 | ann marie2007 i know how that is i was depressed for awhilei had to stay busy not so bad now just hang in there it gets easier. ann marie is right if u call your doctor i'm sure he will give u something to relieve those feelings. lynn lynn
linda anderson
| | |
#35063 04-22-2007 01:23 PM | Joined: May 2006 Posts: 137 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2006 Posts: 137 | Ann Marie 2007- Don't panic. You're about to take a journey. A journey many of us have been on. It's a long journey. Lonely and painful and scary sometimes. You need to know you can and will come out the other side of it. When do you start treatment?
dx 2/13/06. modified radical neck dissection 3/9/06 multiple biopsies of upper airway and direct laryngoscopy. 1 of 47 lymph nodes positive for metastatic undifferentiated carcinoma (lymphoepithelioma). Unknown primary. Finished radiation 5/24/06.
| | |
#35064 04-22-2007 08:49 PM | Joined: Jan 2007 Posts: 50 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jan 2007 Posts: 50 | Hi AnnMarie2007,
My husband was pacing a lot too prior to starting his therapy. I felt so helpless not being able to help him. I called his oncologist and he prescribed valium and it helped him dramatically. Hopefully they can find something that will help you get through this. He said he felt more relaxed immediately, without feeling all drugged up. We had expected the worst going through therapy and, for him, it wasn't as bad as expected. It is amazing how people respond differently to treatments. Vicki
Care giver for Stage IV Base of Tongue TXN3M0 Neck Dissection 1-9-07 IMRT & 8 weekly Cisplatin 2/20/07 - 4/17/07
| | |
#35065 04-23-2007 03:17 AM | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | The "waaiittt is the hardest part". I remember pacing my house at all hours and wondering all the "what ifs". Once treatment starts you will be focusing on a goal and your mind will settle in. It then got really tough for me the 3 weeks after. I was done...yet getting worse every day. I used ativan and lunesta when I really needed it. I probably didn't use it enough. You will come out the other end and will be a changed person. Try to make this all a big positive in your life. Get all your friends and family around to participate and you will come out with stronger relationships than when you went in. Embrace the realtionships and it will all turn out ok. Were all here to ride the wave with you. All my best. Rob J.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
| | |
#35066 04-23-2007 03:53 AM | Joined: Feb 2007 Posts: 76 Senior Member (75+ posts) | Senior Member (75+ posts) Joined: Feb 2007 Posts: 76 | I agree the waiting is the worst. Here we are knowing that we have this terrible thing and we are waiting. But once the treatments start you feel much better in the fact they you are now doing something to fight it. When Marvin started his treatments and we got into a routine of traveling everday to indy then things seem to go better for us. Hang in there. Once you start the time will go by faster then you thought possible. Dont worry about the house it will still be there when you feel better.
Barb CG for Marvin.
| | |
#35067 04-23-2007 09:00 AM | Joined: Apr 2006 Posts: 583 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 583 | " WAITING "
That is a word you will become very acquainted with through out your Journey.
You will wait for , treatment, scan,results of, waiting to feel better. Every time you tune around you will be waiting.
So try and take a deep breath and take one step at a time. Find someone to talk to as well. Read all you can here, the more you understand the better. We are all here to support you as you go.
Take care, Diane
2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
| | |
#35068 04-23-2007 02:15 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Hi, AM2007- here's a very simple piece of advice-Make friends with the dust Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#35069 04-24-2007 01:16 AM | Joined: Feb 2004 Posts: 598 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Feb 2004 Posts: 598 | I am right where you are, AnnMarie. Getting mask fitted today, start rad/chemo May 14. As radiation oncologist was describing all of the steps, the medications, side effects, etc. yesterday, I really began to feel overwhelmed, but it passed.
In a very short period of time, we will both be able to begin counting the days until we are cancer free. I am going to continue working as long as I can, and will remain active otherwise. Sitting is the worst, as it gets the mind rolling, which is a bad thing. ;-)
We tend to focus on all of the bad stuff that CAN happen in terms of side effects, and our mind turns that around and makes it seem like they WILL happen. According to my oncologist, about half of those going through this treatment course have "minimal" side effects. With anti-nausea and saliva producing medication, quality of life is significantly improved.
Keep posting and good luck. You will be in all of our thoughts. Jeff SCC Right BOT Dx 3/28/2007 T2N2a M0G1,Stage IVa Bilateral Neck Dissection 4/11/2007 39 x IMRT, 8 x Cisplatin Ended 7/11/07 Complete response to treatment so far!!
| | |
#35070 04-24-2007 12:00 PM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | Thanks to all of you. I already got fitted for the mask and will start treatment on May 3rd. Just got a call today that they want to do 2 rad treatments one day a week and one treatment the other 4. Does anyone know why they do this?
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
| | |
#35071 04-25-2007 10:19 AM | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | AM 07,
There are many variations to the typical IMRT radiation treatment cropping up. All are designed to kill our cancer quicker and give it less chance to recover. That is why they stress the importance of completing the Tx without delays. Some other examples of the different variations are 2 rads a day with 1/2 the rad each time for the normal 6 to 7 weeks and 1 rad a day with double the rad for 1/2 the normal number of weeks.
The flip side of trying to kill the cancer as quickly as possible is sparing the normal cells of excessive damage. This balancing act has the researchers experimenting with these new variations.
My Tx at Moffitt is different even now for new patients and I just completed mine 8 months ago.
Please have faith in your team and try your best to complete the whole Tx on their schedule.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | |
#35072 04-27-2007 02:30 PM | Joined: Jun 2006 Posts: 82 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Jun 2006 Posts: 82 | I agree with so many other posters about this. The wait is absolutely the worst. Not having the information, or the experience makes you feel powerless. Even when I was sick during chemo and tired from the radiation, I felt like I had a plan, and I was following that plan.
Every day is a step forward...
DX on 05/01/06 with SCC of right tongue. 05/11/06 surgery-tumor 1.2cm & 4 cm clear margins & parital glos. & neck dissection with removal of 34 nodes/1 positive at 4mm)T1N1MO 35 IGRT & 3 cycles of chemo (1 cisplatin & 2 carbo-complete on 8/9/06.
| | |
#35073 04-27-2007 05:04 PM | Joined: Jan 2007 Posts: 735 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2007 Posts: 735 | Anne marie 07
Yup just like every one says ..waiting is the hardest part ..fear or the unknown. I had a hard time to with anxiety ..HOT BATHS for me..that and looking on here to learn as much as I could . My dr put me on Buspar too . however that dropped my blood pressure dangeroulsy low so I had to go off and opted not to try anything else.SOON you will begin and you anxiety may lessen due to the fact you will know what to expect and you will be Fighitng this horrible disease !
Sharlee 35 year old Female Non smoker, very occasional alcohol ..Scc T1N0M0,partial glossectomy and left neck disection ,2/9/07 No rad deemed ness. 4/16 tonsillectomy ..Trimengenial Neuralga due to surgery
| | |
#35074 04-27-2007 11:46 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | AM007 - It's true what Jeff says - about how your mind can just go to the worst that can happen instead of the best that could happen. Everyone reacts differently but the fact that some people do get through it with minimal side effects, also means it is possible for you to get through it the same way, too! Waiting is definitely the pits! the "Fighting" stage is SO much better and you are almost there. Hang in there and do whatever positive thing you can to get your mind concentrating on the positives coming your way.
Annette
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#35075 04-28-2007 02:56 AM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | How do you know if cancer is in your tongue? I keep getting a tingling in the right side of my tongue. The soreness of my throat is now moving to the back of my throat.
Am I even posting this in the right thread?
I do feel a bit better as I am starting to understand more.
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
| | |
#35076 04-28-2007 03:01 AM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | I only meet my teem as I go alone. I meet them all at once rather quickly the first day I was there, and that scares me too
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
| | |
#35077 04-28-2007 10:56 PM | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | AM007 - Any information you can get will help you feel better and more in control so you can fight whatever comes along. Have you checked with your doctor about the tingling in your tongue? When you meet with your team, or appointment, it would really help if you did have someone go with you to absorb all the information they throw at you. When you are trying to think of everything, it's easy to miss a point. When my son had his initial appointments, there were three of us there with him and I remember one time, each of us (4) remembered something different about a particular point! Not only that, the scary stuff is a lot easier to take when it can be diffused among more than one person.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | |
#35078 04-28-2007 11:53 PM | Joined: Mar 2007 Posts: 52 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Mar 2007 Posts: 52 | I have no one except my ex-husband who goes with me. I did buy a tape recorder so I can review all that's been said. The Treatment starts this tuesday, May 2, 2007
Age 55, Right side throat with ear pain. Squamous cell carcinoma of the supraglottis with cervical neck metastasis. Stage IV disease with a T3, N2, MX
March 2008, diagnosed with Non-Hodgkins Folicular Lymphoma
Now taking Thyroid pills for side effects of Rad Treatments
And Life Goes On...
| | |
#35079 04-29-2007 12:24 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Apr 2005 Posts: 2,676 | Anne-Marie 07- just remember that starting Tuesday your life is going forward. Stay strong, Lady. Amy in the Ozarks
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
:
| | |
#35080 04-29-2007 03:20 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | Anne Marie.....I think that once you get started, and get a routine, as unpleasant as it might be, you are going to feel better. The unknown is a scary thing. Our imaginations don't do us any favors, do they? You are gonna be fine. And Tuesday is ALMOST here. I call my surgery "my adventure," ...and there were blessings mixed into the obvious difficulties. Try to see the blessings. They are there, and I can tell that you have enough sensitivity to see them. Please let us know how you feel after Tuesday!! You go, girl!
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | |
#35081 04-29-2007 03:21 PM | Joined: Apr 2006 Posts: 794 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Apr 2006 Posts: 794 | will your ex. be able to go with you on Tuesday? I hope so. XO
Colleen--T-2N0M0 SCC dx'd 12/28/05...Hemi-maxillectomy, partial palatectomy, neck dissection 1/4/06....clear margins, neg. nodes....no radiation, no chemo....Cancer-free at 4 years!
| | |
Forums23 Topics18,168 Posts196,925 Members13,104 | Most Online458 Jan 16th, 2020 | | | |