Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
#34886 01-24-2007 03:08 PM
Joined: Jan 2007
Posts: 346
Platinum Member (300+ posts)
OP Offline
Platinum Member (300+ posts)

Joined: Jan 2007
Posts: 346
How do you do it? I cannot walk into a hospital and lay on a bed and wait for "IT". i HAVE anxieity and cannot make myself do it when it comes down to it. I cry and an so scared and I know that does not help and I am so lucky compared to some, but I cannot do it. How do you do it!Please, I need help- I cannot take anymore!


Partial mandibulectomy and neck dissection 2/3/07. T2NOMO.
Had 14 hour operation which included reconstruction of jaw.
Reconstruction failed. Some radiation, no chemo.
#34887 01-24-2007 04:21 PM
Joined: Sep 2005
Posts: 325
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Sep 2005
Posts: 325
How do we do it? We all do it differently.
Some of us take anti-anxiety meds,
some of us take long walks by the sea,
some of us work to take our minds off the future, some of us hug our dogs,
some of us sit and rock and cry.
But the bottom line is, that all of us go through some of what you are experiencing.
We find SOME way to put one foot in front of the other one and walk through our days.
It is not easy, it IS possible.


Andrea


SCC L lat tongue,Dx 9/15/05 T1N0MX L MND and L lateral hemiglossectomy 10/03/05. Recurrence 11/15/06 2nd surgery 12/04/06 hemiglossectomy 3rd surgery 01/15/07 tonsillectomy Radiation 01/25/07 to 03/08/07 3-D/CRT X 30
#34888 01-24-2007 04:29 PM
Joined: Nov 2005
Posts: 1,128
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Nov 2005
Posts: 1,128
Peace, we are all a bit different about this -- I find myself to be a bit of a stoic/realist and am a bit accepting of the things I cannot change, plus some faith in the professionals that they will do their jobs, but my case was a walk in the park compared to yours.

I strongly recommend that you consult with your surgeon and get some anti-anxiety meds to help you get thru this. My Doc made it really clear to his staff that anything I wanted post-surgery, they should take care of it. Sounds to me like you need some help pre-surgery and toughing it out doesn't make any sense at all if it doesn't help you!

Depending on your personal needs, you may want a lot of family and friends around you -- If so, let them know it!!

Most folks really don't know what to do or say when something like this happens to someone close to them, so they do NOTHING rather than take a chance on doing the wrong thing. In other words, if you want folks around you, tell them that in unmistakable terms -- If you want to be alone (that would be my personal preference, but I think you feel differently about this), let them know that also.

Sometimes we just flat out need some human contact to get us through the hard parts of life and this is definitely harder than usual, so someone holding your hand might be just what you need.

Keep coming back here for some cyber-comfort to go along with the human stuff, because some of the folks here have been through what you are going through and can lend unique support.

Keep on hanging in there.


Age 67 1/2
Ventral Tongue SCC T2N0M0G1 10/05
Anterior Tongue SCC T2N0M0G2 6/08
Base of Tongue SCC T2N0M0G2 12/08
Three partial glossectomy (10/05,11/05,6/08), PEG, 37 XRT 66.6 Gy 1/06
Neck dissection, trach, PEG & forearm free flap (6/08)
Total glossectomy, trach, PEG & thigh free flap (12/08)
On August 21, 2010 at 9:20 am, Pete went off to play with the ratties in the sky.
#34889 01-24-2007 04:34 PM
Joined: Sep 2006
Posts: 493
Platinum Member (300+ posts)
Offline
Platinum Member (300+ posts)

Joined: Sep 2006
Posts: 493
I hated lying on the table with the mask on, but you get through it. On the days I wanted to give up, I looked at my wife's and son's face and I prayed to God for the strength to get through this. On some days I got angry and said to myself I would not let this thing beat me. Some days I made jokes with the other patients. Just talking with the other patients, family and Drs helped too. As you can see I used a little bit of everything to get through. That's what worked for me. Everyone is different as Andrea said and most of felt like giving up. Find your inner strength, it's there, and use whatever you can to get through, just don't give up.


Tim Stoj
60 yr old. Dx Jun 06 with BOT Stage IV. Neck dissesction on 19 Jun 06. Started Tx on 21 Aug 06/completed 33 IMRTs and 3 CT (2 Cisplat & 1 Carboplat) on 5 Oct 06.
#34890 01-24-2007 04:37 PM
Joined: Apr 2004
Posts: 837
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Apr 2004
Posts: 837
Peace,

If you are at a major cancer hospital with experienced head and neck doctors, you have to trust them to do what's needed. If you have any doubts about what's next, go to a different hospital for a second opinion.

I found that once I had a team that I felt confident about, I could rest and let them do their work. As Andrea said, it's not easy but it's possible. There are plenty of us here who have been through it and know that it's worth the effort to push ahead. Your medical team should have someone who can talk with you about your anxiety and help you to be ready for your treatment.

Cathy


Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
#34891 01-24-2007 05:18 PM
Joined: Apr 2005
Posts: 2,676
JAM Offline
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Apr 2005
Posts: 2,676
Dear Peace, please tell you Doctors that you cannot do this by yourself, and ask them to assign a mentor who will be there with you through the process. If you do not have a family member available, then ask them to find a patient advocate, a nurse, a volunteer who will stick with you from this point on. I wager that 80% of the people [on OCF] going through this have help and we know how important that is. You sound "very alone".Is that true? If it is, then you need a partner and you need to ask for one. Amy


CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease

:
#34892 01-25-2007 01:25 AM
Joined: Nov 2002
Posts: 3,552
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Nov 2002
Posts: 3,552
I did everything on Andrea's list and I prayed a lot as well. I was on anti-anxiety drugs from the date of my Dx and mainly slept through the radiation. The mask was a little uncomfortable and intimidating in the beginning but you quickly get used to it and as you lose weight it will loosen up.

Pete is also right that you need someone to walk along side youi through this. Being "bolted to the table" is the easy part. You can have some very rough days in the side effects department -BUT all of these things can be managed. Just take it one day at a time and you can get through it.


Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
#34893 01-25-2007 04:59 AM
Joined: Aug 2006
Posts: 77
Supporting Member (50+ posts)
Offline
Supporting Member (50+ posts)

Joined: Aug 2006
Posts: 77
Peace,

I'd ask if they have a psychologist associated with the hospital. They will have some good techniques to help you with the anxiety. It is a normal reaction (I hope, 'cuz I sure had it), but it is manageable.

Clint


Age 46; SCC BOT T3N1M0l dx 9/06
Cisplatin x3; radiation x42
Completed tx 10/31; Selective neck dissection 12/06
#34894 01-25-2007 12:28 PM
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Peace,

Do everything everyone else has suggested and have them play your favorite music real loud while you're on the table. It made the time go by much faster and took my mind off of the TX.

None of us are super humans but we all got our minds to the point of accepting the rad Tx. How we did it is probably different for everyone but understand you must do this for the sake of living. Actually I found the table time to be relaxing and the cute young techs didn't hurt the process either. I just dreaded the rest of the day.

Peace, you can do it. Just tell yourself this is a part of your daily routine, like a shower, for the next 6 weeks or so. I marked each day off on my calendar and rejoiced my last day like everyone else did and you will to.

Go girl.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
#34895 01-25-2007 05:17 PM
Joined: Apr 2006
Posts: 378
"Above & Beyond" Member (300+ posts)
Offline
"Above & Beyond" Member (300+ posts)

Joined: Apr 2006
Posts: 378
Hi Peace,

My Jack was the biggest baby on the planet BEFORE his cancer. He couldn't even go into the room when our son got shots because his arm would hurt and it made him upset. He thought getting his teeth cleaned was a major procedure to have.

Then along comes stage 4 cancer, surgery, radiation, and chemo and Jack found a strength that neither of us had seen before. You do it one moment at a time, and if you need an anti-anxiety medication - and many patients and caregivers benefit from that - don't hesitate to ask for them.

You also talk to your medical team at every visit. Let them know you're afraid and ask them for help. Also accept help from your friends and family. We organized everyone who was remotely interested to help with the driving back and forth, errands etc.

Keep posting as this is a support group of people who've been there. Take advantage of all the services of the facility you are being treated at. Most have comprehensive interdisciplinary team that work with you.

Jack found visualization worked - he picked calming memories of places we'd been to and put himself there to make the time pass. Taking Ativan to calm down was critical to being able to tolerate the mask.

You can do this, and it's okay to be scared. Jack thought of the radiation like a bug zapper - it was going after those cancer cells and killing them off. Every single treatment killed another one, and you are empowered by doing something to help yourself.

I don't think it matters how you get thru treatment as long as you do. If you need to cry, get medication, go for walks - well you'll figure it out. My big baby turned into a fighter for this, and the experience has changed him forever. You should see him go to the doctor now. He has all kinds of procedures and doesn't think twice about it.

When you have no choice, you find a way.

Good luck and stay strong.
Regards JoAnne


JoAnne - Caregiver to husband, cancer rt. tonsil, mets to soft palate, BOT, 7 lymph nodes - T3N2BM0, stage 4. Robotic assisted surgery, radical neck dissection 2/06; 30 IMTX treatments and 4 cycles of cisplatin completed June 06.
Page 1 of 3 1 2 3

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,912
Newest Members
iMarc845, amndcllns01, Jina, VintageMel, rahul320
13,105 Registered Users
Forum Statistics
Forums23
Topics18,170
Posts196,933
Members13,105
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5